Been a long road, feeling unexpectedly happy and enlightened - not sure if this is normal…
Whilst furloughed I felt something was wrong, numbness in foot, pins and needles in hand, waking me up.
I was diagnosed with MGUS. That’s all I was told. My spider sense told me the GP wasn’t really sure about MGUS. So I insisted I was sent to someone with knowledge and was sent to a haematologist
Turned out I had MGUS Igm Lambda and B12 deficiency.
Sent to a haematologist to investigate. 27 blood tests ordered. I was found to have Anti Mag Neuropathy which is linked to MGUS Igm. This was causing the issues I have.
Anti Mag neuropathy is very rare - 1 in a 100,000 have it.
Then I was sent for a cancer scan for waldenstroms which is a rare cancer linked to MGUS Igm and anti Mag neuropathy.
I had to wait 9 weeks for results. Luckily I was clear.
Sent to a Neurologist who confirmed I have anti Mag neuropathy and also Functional Neuropathy Disorder… didn’t see that coming.
So from MGUS to four conditions.
I was numb really, but in the last fortnight I feel alive. I feel different, I feel kinder… is this a psychological reaction to being so scared?