I wondered if anyone could shed any light on this situation. My Father in Law was diagnosed with Acute myeloid leukaemia (AML) in December last year. His treatment cycles consisted of azacitidine injections for 7 days and venetoclax tablets for 28 days then the cycle starts again.
He had a few health issues with this course of treatment and another biopsy showed the treatment wasn’t working as well as hoped, the courses were reduced so they consisted of just 5 days of injections and 5 days of tablets at the start of each month, it has been like that for several months.
He was supposed to start another course this week but he was told today (on the day that the cycle was supposed to start) that now the cycles will be spaces out more so will start every 6 weeks now.
My father in law just goes with what is suggested but not asking the questions, I wondered if anyone had gone through similar?
Forgot to add that he also has blood transfusions every week / every other week depending on levels, he now also will be having platelets.
Hi @rainbows I am so glad that you have found us.
Unfortunately your medical questions are best asked of your father in laws medical team as they know him and his whole medical history as we are all unique beings and treatment plans are individual.
Perhaps you could sit down with your father in law and discuss questions you both wish to ask?
Otherwise would your father in law let you accompany him to an appointment?
I find it helps me to write down my fears, questions and practicalities so I feel prepared.
I have learnt over the years to be ‘pleasantly assertive’ in all situations.
It is so difficult because I would feel so powerless in your situation.
Someone might be able to share their experiences.
Please do let us know how you get on and really look after yourselves.
Hi @rainbows and welcome to the forum.
It must be really hard when you don’t have all the information.
From a patients point of view, I found asking questions and taking in everything that was being said quite overwhelming and didn’t remember half of it. Having somebody at the appointment with me helped do much. We always have questions written down and if I forget to ask my husband steps in.
Lots of medical questions and I’m sure you’d feel better if they could be answered.
Would your father in law mind if you went along?
