I recently finished my chemotherapy for Acute Myeloid Leukaemia, and the doctors told me I don’t need transplant I just have to be on maintenance therapy for a year.
I really afraid of relapse, Is there anyone who stayed 2 years without Bone marrow transplant?
It’s good to hear you have finished your chemo. I can appreciate your fears you have been through a lot. Have you discussed your fears with your team? Do you have a support nurse that you could make an appointment with to discuss your maintenance treatment & your concerns. It may be helpful for you to call us to have a chat to help you relax a little. I’m also copying in @LauranBloodCancerUK @GemmaBloodCancerUK our nurses Try to look at this as a positive. Please take good care & be assured we are here to support you as much as we can.
Hello and welcome @Pardis
Thank you for posting and well done for completing your chemotherapy. It is completely understandable that you feel anxious regarding relapse and I echo what @JoJoflowergirl suggested in talking to your Clinical Nurse Specialist or us here at Blood Cancer UK Blood cancer information and support by phone and email | Blood Cancer UK.
Your treatment team will have carefully assessed your risk status before making this decision, the factors they consider are response to chemotherapy (MRD - minimal residual disease monitoring) and the genetics of your Leukaemia cells. Perhaps this would be useful to discuss at your next clinic appointment or with your CNS?
I hope that others will get in touch about their experiences but please be assured there are significant amounts of patients that take this treatment pathway and remain in remission.
Hi @Pardis a great big welcome to our forum.
I cannot help medically but I really understand your fear and anxiety.
The fear of relapse is really something I can relate to and live with.
I think the thing that helped me is someone saying to me perhaps just live in today and make the most of every day, who knows what the future holds for any of us.
I am certainly not perfect and get anxious before every medical test, result and appointment.
Other responses might help answer your question.
The main thing is to look after yourself and you are now part of our forum family and I look forward to hearing more about you.
Thank you so much for your help. Yes, I talked to them the decision has been made based on my results. But I don’t know I still afraid
Thank you so much for your reply. It helped a lot.
Yes my doctor made decision based on my results. He even told me my response to first chemo was better than they thought. But I haven’t seen anyone get rid of Acute Myeloid Leukaemia just with chemo in social media.
Everyone I found in instagram that they just have done the chemo they experienced relapse. That is why I’m kind of nervous.