I have Acute myeloid leukaemia (AML) and im 34. So completed my first cycle and bone marrow test came back as in remission and starting next cycle in a few days after getting a week a week back home.
Not sure how to feel, im happy its going the way the team want but also scared as its the first part of the journey.
So starting next week i do round 2 of chemo which means another long stay in hospital bit hopefully full of less issues as i got flu infections and pneumonia during round 1 allthough my body fought extremely well and i felt minimal issues with them.
Im going to glasgow as the plan is stem cell transplant so they want to discuss it with me and also arrange mental health support. Im scared as i dont have that full donor so it wil be a person whose close so i seen theres higher risk of complication and id be alone as its farbfrom family and my partner.
But im trying my best to trust in the journey as if i responded well during round 1 then hopefully my body will respond well for the rest.
But aprt from that i feel great at home and it feels like normal life even if for a week and apart from fatigue at times im managing well
Oh @Lopsided I am so, so glad that you posted and so honestly.
I personally reckon that everything you say is so, so natural and normal, it can be scary.
I sometimes think that the emotional side is the harder part of our diagnosis and way forward.
I am not surprised that you feel scared and lonely.
I would say that you have a really good personal insight.
What I find helps me is to write down all my fears, questions and practicalities and to ask my consultant or specialist nurse.
Voicing all my fears, questions and practicalities really helps me and as they are mine then they are valid and I find it stops them going round and round in my mind.
Keep telling medical people how you are feeling and accept all help and I think you are managing well.
The Blood Cancer UK support line is also there for you on 0808 2080 888.
Please do keep posting I will be thinking of you and perhaps try and keep it a day at a time.
Be very kind to and really look after yourself
Popping by to say Hi! My husband was diagnosed with Acute myeloid leukaemia (AML) at 32 in October 2023. He’s doing brilliant now - he had 8 rounds of chemo & a stem cell transplant in June 2024.
If we can support at all, please do tag us (now or in future!) sending you lots of wishes for recovery & good health