Hi all,
I was diagnosed with Essential thrombocythemia (ET) 18months ago.
Up until now I’ve been on Hydroxicarbamide.
My platelets though refuse to behave and are still in the 600-700,s.
My consultant has suggested trying analgaride if my platelets don’t come down by my next visit.
Does anyone take this medication?
What are the side effects.
I’d got used to the Hydroxicarbomide, with no side effects and am now worrying about the next step.
Thank you.
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Hi @May14 and I am glad to hear from you again.
I hope someone will be able to share their experiences, although everyone is different.
Have you got a specialist nurse or your consultant you might ask your questions of?
The unknown is always scary isn’t it.
Please do let us know how you get on.
Really look after yourself
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Hi @May14.
It’s always tough when you are advised to try new medication isn’t it.
I do hope others can share their experiences but as @Erica said, make sure you voice any questions or concerns to your medical team. Have they talked through the possible side effects with you?
Please let us know how you get on 
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Hi there just came across this post I have just spoke to my consultant today and he has also spoke about taking anagrelide with hydroxycarbamide can you tell me if you started this treatment and how you are coping with it ?
I haven’t had any trouble with the hydroxycarbamide on its own but the same as you platelets are up and down 
any advice would be most helpful xx
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Hi @Lorri welcome to posting on our forum and I hope @May14 and others will respond to you.
I look forward to hearing more about you and please do let us know how you get on.
Be kind and look after yourself
hi Erica thank you so much hope you are well
I am 57 yrs old and was diagnosed with Essential thrombocythemia (ET) JAK 2 positive in feb 2023 as PT Were at 1500, like most of us was a shock , PT have went up and down but I generally have felt ok like everyone else tired at times but try hard to keep going with plenty of excersise at the moment taking aspirin and 1500mg of hydroxycarbamide 6days a week and 1000 on a Sunday so really high dosage hence speaking about anagralide but changing any medication is scary , I try not to worry but some days feel sorry for myself at the start was terrified wondering what was going to happen ? I came across this forum and Myeloproliferative neoplasms (MPN) voice which has helped a lot as sometimes you feel alone and reading about others helps , thank you for taking the time to reply to my post x
Take care 
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