Recently diagnosed

I have recently been diagnosed with essential thrombocythaemia. All a little overwhelming still. Not completely sure how it progresses - whether it gets noticeably worse as time goes on, if it is well managed and monitored, which it is currently. Does it become noticeably worse?


Hi @berylsmart a great big welcome to our forum, I am so glad that you have found us.
Firstly I attach a link to the Blood Cancer UK website on Essential thrombocythemia (ET).
Essential thrombocythaemia (ET) - what is it, symptoms, tests and treatment | Blood Cancer UK
It is natural that you feel overwhelmed, I expect your diagnosis came as a shock.
It is best to ask your specialist nurse, if you have one, or consultant at your next appointment because they know your whole medical history.
If you would like to talk to someone the Blood Cancer UK support line is there for you on 0808 2080 888.
Please do keep posting as I would like to hear more about you.
The main thing you can do is to really look after yourself and be kind to yourself


Hi @berylsmart. @Erica has given great advice and pointed you in the direction of the support line if needed.
Feeling overwhelmed is so natural and I don’t know about you, but when I was diagnosed with lymphoma my emotions were all over the place.
I’m really glad you have found the forum. You will find it a great support where you can say exactly how you are feeling and there is always somebody to listen and offer support X


Hello @berylsmart
Welcome to the forum and we hope that you find this a supportive and informative space.
@Erica and @Nichola75 have already given you great support and information. If you would like to speak to any of the team do please get in touch: Blood cancer information and support by phone and email | Blood Cancer UK
Kind regards


How are you are doing ok @berylsmart :blush:

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