Hi @Summertime let us know how your teeth extraction goes too. xx
The roast chicken dinner sounds awesome @Summertime . I wish someone had made me one when I got home.
@Lyn99 I remember the jug yes⦠nobody gave me any ice though. I did eat nothing but ice cream and jelly for about a week though as I was too sore to eat anything more adventurous.
@ChrisCKW howās it going? Glad things are finally happening. Itāll all be over soon enough and some sort of normality will come back.
Hi All, not feeling too bad at the moment but 5 days waiting for stem cells to start their work now. Should be weekend all being well. Temp. A bit unstable but they take cultures each time it goes over 37.5 c. Iām sure they have more of my blood than I do. @ChrisCKW feeling a bit nauseous so hope they get on top of it for her, really is the worst feeling. Visiting times have been reduced to 1 hour per day (pre-booked), Thanks Boris . Good luck @Danmar with your bloods on the 18th and summertime with your preparations. @Franko how did you get on with your appointment?
Great to get an update @Lyn99. I hope everything keeps going in the right direction. Keep us updated X
Hi,
I have just been informed my leukaemia is back already and I am now to have a stem cell transplant. Been reading through this post and just wanted to say good luck to everyone and thank everyone for sharing their experiences!
Great to hear from you Lynn99 and that you are not feeling too bad. Poor ChrisCKW , there is no worse feeling than nauseaā:tired_face:. Hope very soon you will both be back with us. Be my turn soon
xxx
Hi nbk112 so sorry to hear this. Such a low feeling. When do they hope to get your transplant?
Keep your chin up. We have no choice really, do we.
Lots of strength and good wishes coming your way xxx
Hi @nbk112 I am so sorry to hear that your leukaemia is back so soon, I bet you are gutted.
So you are going to be joining the the stem cell transplant buddies here, they are a really lovely supportive group.
Please let us know how you are feeling and doing and when you have your next medical appointment.
Take lots of special care of yourself xx
Hi @nbk112. Really sorry to hear this. This thread has so many people sharing their experience. I hope they are a great support as you start your next treatment. Sending special wishes x
Awk Hi Lynn. I think of you and @Chris daily. Thatās a bummer about visitingā¦. just when you really need someone!! Iām glad your coping ok so far and I hope it continues for you. Poor Chris feeling rotten with nausea. Can you get your day in ok? You seem to be have a great team taking care of you and are obviously on top of things. Wednesday will tell a tale for me and my badly behaving bloods!!! @Summertime and myself are next in line I think if all goes well. Take care of yourself and I think you are so brave!!!
Xx
We await Wednesday @Danmar.
Hi @nbk112 I am so sorry to hear this. I am waiting on a SCT and hopefully we can support each other and others on this forum. This is just a wee quick post to introduce myself xxxx
Thank you @Erica Trying not to dwell on it too much. Just keep adding to my wee book of questions for my Haematologist. Sheās gonna love me on Wednesday!! Just hope this round of Chemo has worked I let you all know xx
Will be thinking about you on Wednesday Danmar xxx
Hi All, hope everyone is ok. Havenāt heard from @ChrisCKW today but I imagine sheās still struggling after all that chemo. Tends to bite you on the bum a few days later. Love and hugs being sent express service her way. Iām having trouble with low blood pressure at the moment, struggling to drink enough. Normally live on tea but canāt stomach it here. They have a bag of fluids up most of the time. More platelets today too. Donāt feel too bad though in general so canāt grumble too much, love and hugs to all xx
Really hope you get the love for the cup of tea back. Iām the meantime take care of yourself and hope that blood pressure sorts itself out ASAP! X
Hi @Lyn99 and @ChrisCKW. I am a great water drinker here at home, but hospital water is definitely not the same!!!
I am not a tea drinker, but people say there is nothing like a cuppa, I hope your love returns soon.
Yes, winging love and hugs to you both and everyone else in hospital xxxx
Hi @Lyn99 Great to hear from you! You sound in pretty good form considering what your going through. Itās hard to get fluids down when your not up to it and itās a pity youāve gone off a wee cuppa. Stay strong and I hope things continue to be bearable for you. Lots of love to you and @ChrisCKW. Xxxx
Hi Lyn99 good to hear you are coping ok. Hope the time is passing quickly for you. How has your mouth been? They say most people get a very sore mouth.
Thinking about you and Chris CKW lots xxx
Hope all goes well with your biopsy today @Summertime. Hateful but just another giant step towards your transplant. Thinking of you