Hello Summertime. How are you? Did you get home? Have been thinking of you and Chris and Lynn. I hope everyone is coping through this difficult time. I’ve had a bit of a rough week on this oral Chemo… totally wiped out 
Two more weeks on it and then depending on paraproteins a light chain bloods if transplant can go ahead. Lots of virtual hugs 
to all on this amazing forum. I’m so glad I found it!!! Even though I haven’t gotten my head around replying to several people at once……. But no doubt the lovely Erica and Nicola might correct my errors 
Stay strong xxxx
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Hi @Danmar - I think you’re doing just fine. We can all see this reply so that’s good news! 
Sorry to hear you’re not feeling to good this week. Hope you have planned some nice treats for yourself?!?! Keeping everything crossed for you that the transplant can go ahead.
Myself and @Erica have both moments of genius and times when technology isn’t out friend either. Is that fair @Erica? 
Please take care of yourself this week and keep us updated on how you are doing x
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Hi @Danmar you are doing brilliantly and sorry that you have had a rough week and are totally wiped out.
I think @Nichola75 summed up my technology skills rather flatteringly.
To copy someone in just type the @ and then their name on here like @Danmar, sometimes a list of names to choose from mysteriously appears for you to click on the name you want.
I think you need a load of virtual hugs too and please keep posting so we can support you.
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Hi @Danmar yes I got home this afternoon thanks, in time for a roast chicken dinner 
.
I had to wait until the chemo (methotrexate) was out of my body. My consultant came today and said he was given incorrect info yesterday and actually my level was fine yesterday! So I could have gone home yesterday! Annoying!
Anyway I am not wasting energy on negative stuff, I need to keep positive.
Hope you get some good news soon about your transplant 
I keep wondering about @Lyn99 and @ChrisCKW, hope they are ok. I expect they are busy with their treatments.
Keep plodding on, I keep thinking this time next year this will be behind us 
xxx
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So glad you got home @Summertime. Be good to be back in your own bed. Look after yourself and keep us updated.
I love your attitude as well - Sunday positivity 
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@Summertime, so glad that you got home and I bet that roast chicken dinner smelt and tasted wonderful.
Yes, having just come back from my walk ‘keep plodding on’ is very apt, one foot in front of the other and keep posting.
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Hi @Summertime, @Danmar , @Erica, @ChrisCKW, stem cells now back as of Wednesday and waiting for blood levels to plummet towards the end of this week 
before the new bone marrow cells kick in. Being treated for bladder infection and the chemo made me very very sick and diarrhoea started soon after. They have now got on top of the sickness which is a huge improvement and I can now dip into the quite good menus available. Although my oesophagus has been burnt by the chemo too with a dry mouth so have to choose carefully. Staff are brilliant and nothing is too much trouble.
Xxxx
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Hi @Lyn99. I’m so glad the staff are so lovely as you sound like you need looking after and that they are doing a good job of it!
Glad the food isn’t to bad - throat sounds sore. Will that take long to recover?
Be thinking off you for the rest of the week and hope you don’t feel too poorly as the week progresses.
Take care and keep posting X
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Oh @Lyn99 I been so thinking of you and Chris. Sounds rough but you’re doing great to get this far!! Really glad to hear from you and I hope those horrific side effects settle ASAP. I’m glad the staff are good but they are probably saying what a great patient you are. Try to stay strong with your battle to get well. You can do it!!! Love and hugs xxxx 
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Hi @Lyn99 your side effects sound horrible and then to get a bladder infection o top of it all.
I am so glad the staff are brilliant, it means so much and the good menus sound appetising, even if you do have to choose carefully.
Take lots of care and I am thinking of you all, @Lyn99 @Summertime @Danmar and @ChrisCKW look after yourselves.
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Thank you @Erica &@Nichola. You never fail to give encouraging and compassionate support to everyone on this forum
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Hello lynn99, so pleased to hear from you. Sorry to hear sickness was so bad as that’s horrible! I’ve heard kinso sickness med is good (I think that’s what it was called). And a bladder infection too, you poor thing😔. But you are hopefully over the worst and fingers crossed you will start to feel a little better. Thinking of you and Chris lots and hoping it all goes quickly for you.
Sending you both lots of strength and love xxx
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Hello@Summertime. How are you doing?
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Hi Danmar
All pretty good thanks. My transplant date has been pushed back 2 weeks annoyingly but all still in place thank goodness. So for the next 4 weeks I’m just having bloods monitored. Although I do have a bone marrow biopsy next wed HATE THEM! I also need to have 2 teeth out before transplant.
How are you and how is your treatment going?
xx
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I hate the additional things that have to be done - I had to have teeth out before radiotherapy!
And yes - bone marrow biopsies are my least favourite things to!
Be thinking of you. Plan something nice for afterwards. You take care and hope it all goes ok X
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Hi @Summertime I had to have 6 teeth out too.
I was referred to a specialist dentist (probably the only one who would take me on !!!) and I have to say the dentist, my GP and Haematologist all worked together and I was on antibiotics before during and after the procedure.
The dentist ended up absolutely covered in blood and I looked as if I had done 10 rounds with Mike Tyson !!!
I lived on tinned custard and ice cream for ages, but have had no trouble with the few teeth I have left.
How annoying to have transplant date moved back.
Look after yourself especially after your bone marrow.
Gosh @Erica - 6 teeth is a lot and it sounds like it was quite an unpleasant experience! 
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Awk @Summertime sorry to hear that. But I suppose having your two teeth extracted is safety for you. Yes bone marrow biopsy’s are awful. When I was first admitted last year they had to repeat the first one THEN they LOST it!!!
so I had to have it repeated. I’ve been a bit rough on this oral Chemo for the past few weeks but I’ll find out on the 18th if it has worked or I may need more 
The good thing is your transplant is still going ahead. Hope all goes well for you next week 
What would we do without @Erica and @Nichola75 sharing their experiences and support. Take care I’ll be in touch x
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Hi @Danmar. One of the most valuable things about this forum is the sharing of experiences, don’t you think? Everybody’s contributions play such an important part in supporting each other!
Oh my goodness - I can’t believe how many bone marrow biopsies you had to have done. That must’ve took so much mental strength to get through!!!
The 18th is nearly here. It’s horrible waiting for results isn’t it. We will all be thinking about you. I hope you start to feel a little better very soon.
Sending lots of love X
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Oh @Danmar, your bone marrow biopsy experience must have been horrible.
Fingers crossed for the 18th, eh, please let us know how you get on.
Thinking of you xx