Awaiting or considering or had a stem cell transplant, a place to share here

Going through treatment
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Sending you @ChrisCKW and @Lyn99 so many good wishes and thinking of you both loads.
Take lots of care of yourselves.

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Hello All,
Thankyou so much for your best wishes. Nice room with a view, working TV and wifi! Hickman line fitted same day as @ChrisCKW, bit uncomfortable but ok, mine doesn’t dangle so much as I’m tall. Surgeon came up to see me before procedure. I didn’t wear wig as having sedation and it might have ended up backwards or caught in the trolley wheels. When he checked on me later had wig and make up and he didn’t recognise me :flushed:
Had nasty chemo that kills all bone marrow today. Had to chew 2 jug fulls of crushed ice as the chemo burns from mouth to bum!! Chewing ice should hopefully reduce mouth ulcers. Had a diuretic injection, jug to measure wee and chart to fill in. Odd sensation trying to eat ice chips , fight with chemo stand and use a wee measuring jug that wasn’t big enough in the loo :worried:
Had some stronger anti sickness meds so hoping that I can eat my dinner without it returning later. Love to all xx

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Hi @Lyn99. It’s so lovely to hear from you.
It sounds like you had a very busy first day!
It did make me laugh when you said the consultant didn’t recognise you!
The room sounds nice and a big bonus that the TV works well!
The thought of eating ice makes me feel funny. I hope I never have to do it - my sensitive teeth could not withstand it!
:crossed_fingers:that the sickness medication works and that something nice is on the menu.
Please keep us updated on how you are doing. Sending lots and lots of love X

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Lynn99 great to hear you are settled in and things are going ok for you. Hope the meds work for you. When is your transplant planned for? Are you allowed visitors?
Sending positive vibes your way xxx

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Hi @Nichola75. Ice eating for 1/2 hour not recommended. Strangely enough I have really sensitive teeth but didn’t have any problems there. Maybe the nerves were frozen! The nurses were like coaches saying more, more, don’t stop!
Hi @Danmar, hope your treatment is getting bloods back in order, I think you will have to do the ice jug challenge too😁

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Hi @Summertime, yes 1 visitor at any time, overnight if they want to just have to ring and have temp taken. Husband has to wear gloves, mask and apron. All necessary as my neutrophils will dip to 0.1 :worried: before my stem cells start to make blood again. Stem cells back in Friday but take at least a week to start working. That’s when I’m going to feel pretty poorly. Xx

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Hi Lynn YOU GO GIRL!!! Great to hear from you. I bet you looked great that’s why the consultant was surprised. Eating ice? :thinking: would frozen yoghurt or similar be acceptable? Keep your chin up you’re doing good :kissing_heart::kissing_heart::kissing_heart:

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Hi @Lyn99 another great wig tales to tell, I did laugh and can picture it caught in the trolley wheels. I bet you gave the Surgeon a shock thinking he was in the wrong room and had lost his patient.
2 jug fulls of crushed ice seems the ultimate ice challenge to me. I bet those jugs were bigger than your ‘wee’ jug!!!
Yes, anti sickness meds are so important.
You have had quite a day, you must be exhausted, look after yourself.

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Hi @Danmar, it’s funny you say that. When I first saw the surgeon he was giving me the what can go wrong talk and didn’t crack a smile. At that point I just had a cap on and looked boyish. He was far more cheery later
it was either the wig and makeup or maybe he was just relieved that he hadn’t operated on the wrong person !!
Excuse the phrase but they are quite big jugs :grin:
I like the idea of yoghurt but not in that sort of quantity and I think the ice works to flush the nasty chemo out of your system along with the saline. Definitely the ice challenge coming your way :roll_eyes: xx

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ChrisCKW hope your chemo has gone ok. I bet it all feels a bit surreal at the moment?
Thinking of you lots and imagining myself in your shoes soon :scream:

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Lynn99 it all sounds positive so far :hugs::hugs::hugs:

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Have been thinking of you Chris. Hope Chemo was easy on you. Xx :kissing_heart:

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Hi all
Having second lot of chemo for today, am a bit tired but so far just skin itching from yesterday’s chemo, and a little lightheadedness from a drug to prevent seizures (apparently the chemo rarely can cause a seizure)
Just started going off food but daughter has brought me in fruit, hot cross buns, biscuits and a fresh baguette.
Sent @lynn message this morning, her hubby replied to say she wasn’t feeling too good but sent her love.
Chat again soon xx

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Great to get an update. Sending you both lots of special wishes. I hope the food your daughter bought does the trick X

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Hi ChrisCKW
Good to hear you are ok and having some nice things to eat to tempt you. Have you had chance to try the hospital food yet? Good your daughter has been able to visit too. Is it just 1 person and do they have to gown up?
Hope you are feeling ok and not too tired.
Good to get an update about Lynn99 too, hope she feels better soon.
Xxx

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Hi @ChrisCKW sorry to hear that you have started to go off food but what a lovely variety of food your daughter brought in.
Sending you, @ChrisCKW, @Lyn99 and @Summertime so many virtual good wishes.

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Sending lots of love and virtual hugs Chris :smiling_face_with_three_hearts::smiling_face_with_three_hearts: and to Lynn too :smiling_face_with_three_hearts::smiling_face_with_three_hearts:. I hope your able to eat something from that lovely list xxxx

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There is a 24 hour menu @Summertime , the main food itself is ok - fair choice, but with main meal at lunchtime. It’s also hospital food, so not maybe what we are used to, but edible

I was a touch nauseous In the night and my Hinkman line still rather sore. Today is same chemos as yesterday, but getting through it all with irony, sarcasm and my phone!

Hugs all
X

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Thank goodness for those three things getting you through! Hugs back :blush:

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Thanks so much ChrisCKW for your inside info😎 very useful.

Hope they keep the nausea under control for you and your Hickman settles down. Must admit don’t fancy thatđŸ˜«.

At least you are getting through it and on you your way to being better :grinning:.

Sending lots of strength and love to you and Lyn99 ( hope she is doing ok).

I am in Nuffield in Cambs atm as I have done joint care. Been here since tues pm having methotrexate, hopefully home tomorrow or Sunday. Dr Crawley popped in earlier just as I was munching my toast, he said it’s not possible for me to see ward due to COVID- just as well I have insiders to assisted😀.

Keep strong xxx

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