When I was in hospital earlier this year they let me walk the ward corridor, and I even got outside to the tiniest courtyard and paced like a caged animal. I walk most days, even when I’m feeling rubbish and the weather is 
so I think it will be walking/fresh air that I miss most.
Thanks for your thoughts and wishes @Franko - will keep you posted on how things go xx
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@Danmar, @Erica Thanks so much for your best wishes it really is comforting to know that many people on the forum are offering their support and I am definitely being squished by all the virtual hugs 
@ChrisCKW I’m with you, it’s the confinement that bothers me. I always walk even if my back hurts, exercise bike just not the same. Wine ice cubes, brilliant, should be on the NHS…xx @Franko hope you will be able to get some action on your current issues soon xx
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@ChrisCKW just had the call to go in this evening 
xx
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Wow! Good luck @Lyn99 - I’ve messaged you xxxxx
It’s scary but is an amazingly hopeful time. Hope by now you are settling in xxx
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Lyn99 hope you are settling in ok xxx
ChrisCKW not long for you now, hope it all goes smoothly this week for you xxx
Danmar what hospital are you under? I am still on oral chemo too. I have had one course of methotrexate and going as inpatient next Sunday again for 5 nights for methotrexate again. That’s brings me up to around 15th Aug. My prov date to go in for transplant is 30th Aug 
Will watch this space to see how everyone is getting on, sending strength and big hugs xxx
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Hi @ChrisCKW and @Lyn99. I’ve been away for a week and so much has happened for you both. Sending extra special wishes and hoping it all runs smoothly from now on! Take care X
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Hope you had a lovely time @Nichola75 
xxx
Lynn in and I’m waiting ……
Waiting ….
Waiting ……
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Only 2 weeks for you @ summertime … if we are in at some time I’ll pass notes along the corridor! xx
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Hi @Summertime I’m going to Belfast for mine…. A bit across the water 
and I think I’ll still be a few weeks behind you and @ChrisCKW. I still don’t have a date it all depends on how this Chemo works. It’s not Methotrexate but similar to Velcade and steroids. . X
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I’ll be on Busulphan Fludarabine and Thiotepa; then methotrexate after - I’ll be so toxic I’ll glow when the lights are off xxxx
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So went for platelet transfusion (had mild allergic reaction so quick dose of piriton), then my Covid swab result for yesterday didn’t arrive - seemed lost, so I had another Covid swab and was told that would take 4-6 hours. I rang my local hospital who had done the test -the result was negative but result somehow didn’t get emailed.
So Hinkman line insertion back on. Platelet count was now above minimum level. The unit fitted me in - I declined sedative so that I could leave earlier.
Then was told no bed available on the SCT ward.
So got home, unpacked the things I needed for today.
Phone call a couple of hours later to say there will be a bed after 9 tonight - they’ve moved someone but need to deep clean room.
Repacked stuff I had unpacked! Leaving to get to hospital in about 15 mins.
Meanwhile @Lyn99 snd I messaged each other. She had her line fitted around 10am this morning. Her room sounds nicer than she feared and the tv worked! We will compare notes again later/tomorrow.
One last funny - when I went into surgery the surgeon was looking over both shoulders and lower neck with the ultrasound. Apparently I have small veins (surprise!) and so when they were struggling to insert line they asked if I could hum a tune. After I checked they were serious I hummed rather melodically Fix You by Coldplay. The assisting nurse recognised it and got a fit of the giggles! I thought it was apt . (Apparently humming increases air in diaphragm which lifts/swells the vein - or something similar)
Ok - off to do battle with unpacking again then chemo and SCT
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Well you learn something new everyday don’t you!
Really great to get updates. Keep letting us know how you are both doing!
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It really is an emotional and practical roller coaster isn’t it @ChrisCKW.
I love the humming a song, I think all the medical team would be covering their ears although I would be well away in song. Quick thinking @ChrisCKW with Fix You, mind you your Friday Jukebox choices should have made me realise you would smash it.
I await your next updates @ChrisCKW and @Lyn99 and look after yourselves.
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Oh what a weird and frustrating day for you. So you are on the ward now?
You being asked to hum made me chuckle 
I have been at Addenbrookes all day in nuclear something. Having radiation injected into me then blood tests and an ecg, all in prep for transplant.
Not sure if you are aware of Maggie’s? It is an organisation that offers psychological support to cancer sufferers and their family members. I had a few hrs to kill in between appts so popped into their place on Addenbrookes campus. They offer zoom yoga, relaxation and a lot of other sessions. Thought it might be useful when I am in for transplant.
Looking forward to hearing how you are getting on. Also Lynn99 and Danmar.
xxx
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ChrisCKW
Just wondering, how was your Hickman line?
xxx
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@Summertime yes I popped in to Maggie’s when I had my nuclear testing done 
had nice cup of tea. They are having a new purpose built centre constructed on the site towards a lake. It sounds like it will be beautiful.
Hinkman line fine, but uncomfortable in the night - I’ve got some bruising. And the line itself dangles miles! 
they took bloods from it last night so all working well.
Got to sleep about midnight last night and woke up early. All the excitement of the day probably kept me awake. But I brought a new kettle with me so have had an early tea 
Will keep you all updated and please keep your fingers crossed for @Lyn99 and for me x
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Morning! Good to hear you are finally in situ. Hmm not looking forward to Hickman line but hey ho. Have you sussed out the visiting?
So what’s the plan for you now you are there?
How is Lynn99 doing? I haven’t seen any updates from her.
Thinking of you both lots xxx
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Oh Chris it’s all happening for you now!!! I smile when I think of you humming 
I’m so glad you got in eventually. Sounds like Lynn is happy enough at the minute too… love to her. I will be thinking of you as you plod along… continue to humm… xxxx
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She has v strong chemo today: the first day she said was bit of a whirl.
Visiting is by appointment and there’s a phone number to ring - will take photo of notice when I get back from xray
All ticking over for me now - think I’ll be on first chemo I. About 90 mins of so
Xxx
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