Has anyone else tried Venetoclax after Azacitidine has stopped working?
Hi @Lin. I can’t help with your question but I’m hoping somebody on here can. It must be scary when one thing stops working? I look
forward to learning more about you
Hi @Lin a great big welcome to posting on our forum, obviously you must be concerned and scared as I am presuming Azacitidine has stopped working for you.
I also cannot assist with your question, I hope someone will be able to share their experiences.
You might also like to write down all your anxieties and questions etc. to ask your health professionals.
You might also like to talk to someone on the Blood Cancer UK support line.
I look forward to hearing more about you.
Look after yourself.
It’s actually my husband who has Acute Myeloid Leukaemia… he has been on Azacitidine for over two years but he is having more frequent transfusions and the latest bone marrow biopsy shows that the Azacitidine is not controlling the Acute Myeloid Leukaemia as well now and the Blast percentage is increasing. So they have started him on a combination of Azacitidine and Venetoclax. I have found reference to this being used with patients who have not been treated previously but cannot find anything for patients who have been treated with Azacitidine before.
Hi , my dad is starting on venetoclax and azacitidine next week after being diagnosed with Acute Myeloid Leukaemia. I will keep you posted how it goes xx
Hi @Adele. Always great when others can share their experiences. How are you and your dad doing? X
Hi @Adele how are you both feeling, can you talk to each other and have you got family support?
Lots of questions !!
We are here for you and if you would like to talk to someone the Blood Cancer UK support line is also there for you.
Look after yourselves and be kind to yourselves.
Hello @Lin , welcome to the Forum. Can I ask if your Haematology team are going to combine the Azacitidine with the Venetoclax or Venetoclax on it’s own? Here is some information about Venetoclax Venetoclax (Venclyxto) | Cancer Research UK. The main issues to consider is risk of infection. Your Haematology team will arrange regular blood tests to ensure your blood counts are stable and ask you to report any signs of infection.
I do hope this helps and do call the Support Line if you need to talk anything through: How to contact Blood Cancer UK | Blood Cancer UK
Take care Gemma