From 2018, unknown to me, my platelets have been constantly above 400, 433-515 range since then, currently my results are 473, I am 30 years old, the only reason I’m being seen by haematology is due to my sister coming into a doctor’s app with me and asking what is going on and why I’m just being given anti biotics for chest infections and no further tests, our mum was constantly ill with colds, coughs and chest infections and it turned out to be stage 4 lung cancer… we got 6 months with her… GPS also wasn’t concerned with our mum, so my sister didn’t want to be told it was ok and be left anymore…she asked for a senior GP to look at my history and now I’m under haematology as she was concerned and wanted to be safe considering family history.
What I’ve read so far trying to maybe find a small answer in people’s posts, it makes me feel silly to be so worried but also I can see why I’m worried?
I am now being told that because JAK2 was neg, checking for leukemia cells and auto immune was both neg, you’d think that, I certainly did, that I just may need to take aspirin as my GP wrote on my notes abnormal blood tests but normal for patient, not to be advised if it doesn’t go down I’d need a bone marrow biopsy by haematology.
I do get ill a lot, constant colds that steer straight into attacking my lungs, X rays have always shown my lungs are great for someone with asthma. So to be utterly honest, I am stuck in a state of anxiety because of the unknown and what ifs and I am scared. If it does mean a biopsy can I be put under I don’t want to do it if I can’t just thinking about the procedure makes it hard to breathe…
I have mental health problems also so it makes me look so self aware and I 'have myself together ’ but I don’t…
it’s quite usual for them to keep an eye on your platelet levels and should they continue to be bit high to suggest bone marrow biopsy - as although blood testing is very thorough sometimes a look at the bone marrow gives a further picture and it’s a “normal” check to do for consistently higher platelets. I have had a few bone marrow biopsies over the years, it’s ok, the teams doing them are very helpful and know for some it’s daunting and there are options they can use to assist that - I know many patients has gas and air for it and find it helpful - I have always found them ok to have even without that added but each patient is different and the team would help you with that should it ever be suggested you have one - for now go with them keeping a check on your platelets and take it each step at a time - and let us know how you are getting on