You need to take beta alanine powder you can get it on Amazon I use the bw brand it works every time
Hi @Tony1867 thanks for sharing what works for you.
Perhaps it is worth just checking out any products anyone wants to try out with their medical teams first, especially if you have any other medical issues or are taking other medications.
I look forward to hearing more about you.
Look after yourself and please keep posting
2 Likes
Hi Erica
I knew how the guy felt due to going thro the same thing I know it works for me so I thought I would share it, no one has to try it if they donāt want.
Tony
1 Like
Hi @Tony1867
Thanks for the recommendation. My itching comes in peaks and troughs so Iāll keep this in mind!
I think @Erica was just saying when trying anything new in an attempt to ease symptoms and side effects that itās always best to check with the medical team to ensure itās not going to prove counterproductive. We maybe taking additional medications unique to us or diet maybe different so what works for one maybe not work for others. Itās just like any prescribed drug!
That being said desperate times come to desperate measures and when I get itching I will literally try anything so thanks again for the recommendation and where best to get it from. Itās awesome youāve found a product that has worked really well for you!
Thanks for posting 
2 Likes
No probs like u say desperate times lol
Take care
Tony
1 Like
I have not been in touch for ages because I had trouble posting.
I am not very good with using computers. I think it is an age thingā¦.
I have been really well since starting my new treatment āRuxolitinibā
No more nasty itching/burning skin.
I have been on holiday toMallorca to see my siblings
I hope this time I a post this message.
You have been such a great support for me in the pastā¦ā¦ I will never forget how much you have helped me. Even though I donāt know you, you are my friends.
Thank you for being there.
To all Polycythaemia vera (PV) sufferers. Feel free to contact me through this wonderful forum.
I wish you all the very best.
Sending love.
Oleconchi
9 Likes
Wonderful to hear from you, you have crossed my mind oftenā¦ May this much better period last for ages!!! Look after yourself
2 Likes
Oh @oleconchi,
It is just lovely to hear that you are doing so well. I am so pleased to hear that your debilitating symptoms have been resolved and your treatment is going well.
It must have been such a tonic to travel to Mallorca to see your family & i hope you have planned more adventures.
As always we are always here for you and love to hear from you.
Do Take Care, Lauran
2 Likes
Oh @oleconchi how absolutely wonderful to hear from you again, I have really missed you.
So great to know that you did have your family holiday in Mallorca that you were hoping for so much.
Thanks so much for offering to help others, that is what our forum family is all about.
How are your family?
Please do keep posting and really look after yourselves.
2 Likes
Great to hear it this i know you struggled for a long timeā¦all the best
3 Likes
I am just posting a message to say āhello againā.
I often think of this lovely caring group. You wee my friends in my darkest days and I will never forget you.
I am feeling really well. No nasty symptoms since I started the new treatment. I have regular blood tests every 3 moths. Also I have not had the need for vinesections. I am living a normal life and traveling regularly to see my family in Spain.
I am sending my best wishes to all of you. Here for anybody suffering with Polycythaemia vera (PV) who may want to contact me or discuss symptoms, feelings, treatmentā¦support is so important and you have been that to me. Thank you!. Look after yourselves. Have a very merry Christmas. I will keep in touch. xx
7 Likes
Oh @oleconchi how wonderful to hear from you and I am so glad that you are travelling regularly to see your family in Spain.
How great that you are here for others too, you certainly have gone through itā¦
I would like to wish you you and all your lovely family festive greetings and yes, please do keep in touch.
Look after yourself
1 Like
Hi @oleconchi have you seen this Blood Cancer UK link Can you help us with our information about itching? - Help shape our work - Blood Cancer UK Online Community Forum I am sure your experiences would be so valuable
1 Like
Hello @oleconchi
Thank you for letting us know how you are getting on with your new treatment. Itās wonderful to know that it suits you and you donāt have any nasty side effects from it! Amazing! I am really pleased for you.
Wishing you and your family, here and in Spain, a lovely Christmas time.
Take care, and do keep in touch. 
2 Likes