I’m confused, I went to my doctor as I was feeling unwell, sweating loads, shakiness in my arms and legs and generally exhausted all the time, my blood work came back normal so is this just how you feel with Non Hodgkin’s lymphoma? Just exhausted all the time? I keep being told to act normal and do my normal things but I don’t feel like I normally do, I’m confused by it all. I have many mental disorders all stemming from watching my little brother die of leukaemia and I’ve had no support for this and I’m struggling with the lack of information surrounding what is normal for people with Low Grade Non-Hodgkin lymphoma (NHL), anyone with any insights would be appreciated, thanks in advance
I can hear in your post that things are difficult for you at the moment.
It must have been so tough watching your brother become ill and now you have a blood cancer. It’s no wonder things are getting on top of you. Perhaps you need some support in dealing with his death and with processing your diagnosis? Is this something you would consider?
With regards to your question about blood work. I have follicular non Hodgkins lymphoma and my blood work has always been perfect. I do suffer with fatigue but this is more to do with the mental toll it takes on me.
Have you discussed your fatigue with your GP or consultant? If not it may be worth doing this.
Remember, the support line is there if you need it.
Please tskee care and keep posting
Thank you for your advice. I’ve had therapy regarding losing my brother but not since my diagnosis so it could be something to explore. I feel like I’m losing my mind most days to be honest, there’s this anger that festers and comes out when I’m low, I know it’s something I have to deal with and come to terms with but it’s never straightforward. Exercise has always been an outlet for me so not being able to do as much has had a negative effect on my mind set.
Hi @Adman, thank you so much for taking the time to share this. We’re so very sorry to hear about your brother- this must understandably be so tough for you and appreciate it’ll be on your mind now. Nichola has given you some great suggestions. As she mentioned if you’d like to talk through things with our Support Team, please know you’re so welcome to reach out to us (Blood cancer information and support by phone and email | Blood Cancer UK). We can also talk you through how to access further support if you do feel like this is something you want to explore? I thought I’d share our webpages mind and emotions with you in case they’re useful, as they talk about ways to look after oneself and get emotional support.
Fatigue is also tough for a lot of people- it is very common in blood cancer and in case it’s useful, we do have some information about fatigue on our website but we’d be happy to talk you through some of this if you like. Do you have a Clinical Nurse Specialist you may be able to contact to share your concerns with as well?
Please know what you’re going through is so understandable. It’s hard losing a loved one and dealing with your own diagnosis, too. We’re here for you. Take good care of yourself.
Thank you, I do have a nurse, il.give him a ring tmw. I will also read through the stuff you have mentioned.
Hi @Adman firstly you are not alone as you are part of our forum family now.
I am so sorry to hear about your brother and personally I think that will compound your shock at your diagnosis, it must have triggered so much for you.
Please really be kind to yourself and perhaps some professional is a good idea.
Please keep posting