Chronic Myeloid Leukaemia

Hi I’ve been looking everywhere for a forum since I was diagnosed in June last year with Chronic myeloid leukaemia. It’s been hard as only been cancer free for two years having come through chronic ductual breast cancer . My first treatment not working . Ended up at Christmas with my first blood transfusion as was so poorly . But last few weeks been the worst .waiting for results to start new drug . I was in hospital two weeks ago lowest haemoglobin reading I’ve had just couldn’t function ended up through A&E for transfusion blood boasting injection once week . I started my new drug but having horrible side effects just been so low . Try to keep going but it’s hard . Would love to hear from anyone who has Chronic myeloid leukaemia :crossed_fingers::partying_face:


Hello @Fee
A huge Welcome to the Forum. I am glad you’ve finally us! Thank you for posting and sharing a little bit about yourself. I’m sorry to read that you got so poorly you needed a transfusion at Christmas, and now you’re needing injections too (is this EPO?).
I do hope that over the coming weeks the side effects subside and you start to feel better. I am sure there will be other users on herewith Chronic myeloid leukaemia that are happy to share their tips and experiences too.
Please know that at anytime you can call our Support Line if you need additional support or information: 0808 2080 888.
Keep us posted on how things are going for you on the injection and with your drugs.
Take care, Heidi.


Hi @Fee I have replied to your other post.
Take care