CLL and Covid

Well life is never dull is it ? My husband had a bit of a cold last weekend or so we thought. We kept out of the way of each other so I wouldn’t catch it Wednesday I decided to test him for Covid and it was positive ! By Thursday I was positive too. I have to say the process that followed was very smooth I
Contacted my haematology unit who referred me for a telephone assessment This happened really quickly I was asked a number of questions about my health as I have Chronic lymphocytic leukaemia (CLL) and asthma. I was eligible for anti viral medication and a doctor contacted me shortly afterwards. A few more questions and he sent a code to share with my pharmacy and the medication was there next morning. He also sent advice via texts about monitoring my sats and when to get help. Have to say my sats dropped to 92 a few times but I’m just about through it now. The worst thing is our new grandchild is being delivered by caesarean section tomorrow 3 weeks early due to gestational diabetes too much amniotic fluid and baby getting too big. It’s been a difficult pregnancy and I had contact with them both in the week so Im terrified that I may have unknowingly passed Covid on. We were meant to help out with older kids but I’m still faintly positive hopefully clear tomorrow. It’s just the worst possible time. Worked as a nurse right through Covid and until recently and I catch it now. Devastating. Thought it may be useful to share my experience for others as the anti virals are to help prevent serious illness in immuno compromised people

3 Likes

Hi @KayC as you say life is never dull is it.
I bet it was a shock when you both tested positive for Covid. After all this time I just expect to see that line in it’s usual place.
Thanks so much for sharing your experiences and the procedure of getting the anti viral meds, you have helped me and I am sure it will others too.
What terrible timing for you all.
You say about working as a nurse right through Covid times and not catching it, but I think the strain is ever evolving and is certainly not going away any time soon. Therefore I take it as a timely warning to us all.
Lots of love to you and all the family and lovely to here from you, but pity pity about the circumstances. xx

My daughter in law tested positive for Covid today ! Devastated

3 Likes

@KayC I am presuming it is this daughter in law that is pregnant and I can understand your feelings so well, but you weren’t to know at that point when you saw them that you might have Covid.
Her medical team will be there for her.
Please do keep updating us how you all are.
Thinking of you all loads xx

1 Like

Hi yes my daughter in law. Baby arrived this morning and was rushed straight to intensive care to be ventilated. Nothing to do with Covid it doesn’t cross the placenta but babies of diabetic mothers are more prone to infection and breathing problems Such a worrying time. They also nicked a blood vessel during delivery so Amy lost a lot of blood and is being monitored. We don’t know the sex of baby yet their big brother and sister are going to be the first to know after school today It’s been an emotional roller coaster today

2 Likes

Oh @KayC you must be completely exhausted emotionally with all that is going on, and you are probably not feeling great after Covid.
Mother and baby sound in the best place.
I always ask the mum how they are too, I see too many people take one look at the mum and say my pet hate ‘oh, you do look well’, when that is not actually what they are feeling emotionally and physically.
I bet big brother and sister are excited too.
Please do keep posting how you all are big and small.
Spoil yourselves.

Thank you we are wrecked. Will update when we get news

1 Like

I had covid for the first time back in the last week of October 2024. Someone visited us and while not actively unwell was obviously carrying it. My partner recovered relatively quickly but I felt very unwell, although I did get the antiviral Paxlovid via 111. Then a rash appeared around my left ear. The chemist thought it was excema. Within two days blisters appeared and it felt hot and with sharp stabbing sensations so I went to see my doctor. He felt the time line was not like shingles and prescribed some antibiotic, antifungal cream. That was Monday. By Thursday the pain was increasing and huge blisters started to develop so I went back to the doctor. By this time the side of my face had also begun to swell. It was felt I should attend the EMT department of our local hospital, as there was concern I might get sepsis. There was a long wait there but I was triaged swiftly, given pain relief, and blood tests were taken. Finally after 5 hours I was given a single room, with a commode, put on antibiotics and and an antiviral drip. I was there for three days while they tried to assess what it was that I had, although the treatment would have been the same. I was sent home with a weeks supply of antiviral and antibiotic tablets and some swabs for when the blisters broke. They did but apparently no pathogens were detected. I had a follow up appointment at the hospital and a month’s open appointment. It took two months for the blisters to heal and the necrotic, sore skin to become tolerable. It seems I will never know what caused the blisters, but I am now looking forward to 2025 without discomfort and hopefully a much healthier start! During this time it seems my blood results held well and actually looked slightly better than a previous blood test. I am glad I had had my Autumn covid vaccination three weeks before all this, for as my haematology doctor said, if I hadn’t think how much worse it could have been! Curiously though I did test postive for about 10 days after the first bout of covid, but by the time I was admitted to hospital I had a negative test. When I came out of hospital I had what I thought was a cold but tested positive again! So was this like a rebound covid infection, that had been suppressed by the antivirals? Another question not to be answered I think, but again it took another 10 days to clear. When I mentioned this at the haematology clinic I was asked why I was still testing after such a long time. My answer was because I didn’t wish to infect anyone I knew, or even a passer by. Do people test at all??

1 Like

I had severe reactions to my first two Covid jabs back in 2020 prior to my diagnosis of Chronic lymphocytic leukaemia (CLL) in 2022. I had huge skin lesions covering entire limbs it was very strange. Also random face swelling. Ended up in ED both times
But have been fine with the next 4 vaccinations. I’ve had Covid twice had the anti virals and wasn’t too bad at all. Ive caught it both times off my husband so I do test him if he is unwell at all so we can isolate as best we can. Hope you feel better

2 Likes

Gosh @Spimula and @KayC both reactions sound very nasty, painful and scary to me.
We really are very complex individuals aren’t we.
In answer to your question @Spimula yes, I do still test if I feel ill or are seeing people.
I get so anxious awaiting the result too.
Look after yourselves and I hope others can share their experiences for you too

1 Like

KayC skin lesions sound awful. I’m glad to hear you have been alright since.Are any of these effects written about I wonder? I am glad to hear someone else tests whenever someone is unwell. Our family is very good and always test before they see us. We are always grateful for that.

1 Like

Testing helps keeps us safer from covid infections, but other infections take their toll. I am so grateful to friends and family who take care, who test, or who avoid visiting if they feel unwell.

1 Like