Back to forum after a while guys (sorry) so after being diagnosed with Chronic lymphocytic leukaemia (CLL) last july ive been told today by my haematologist that treatment time is due.
Ive been given 2 choices which are:
Venetoclax along with Obinutuzumab or
Acalabrutinib.
Ive been given a choice which I’m preferring the venetoclax option but does anyone else have experience with these options??
Hi @Hellwalker78 glad to hear from you again, but sorry for the reason.
How do you make such a big decision between 2 Unknown treatments?
I have copied some information from the Blood Cancer UK website for you.
Treatment options for CLL | Blood Cancer UK
The Blood Cancer UK support line is also there for you on 0808 2080 888
I hope others will be able to share their experiences for you.
Please do let us know how you get on and really look after yourself
I was diagnosed with Chronic lymphocytic leukaemia (CLL) in July and started treatment soon after. I am on Acalabrutinib which is taken twice a day along with Allopurinol, Co-Trimoxazole & Aciclovir. I have not had any significant side effects. My consultant says that treatment is going as expected. I feel a little less tired than earlier in the year otherwise much the same. I’m not an expert this is just my situation, I hope that things work out as best as they can for you.
Hi. Good to hear from you. I was on a clinical trial called Assure, for Acalabrutinib for 28 months. I sadly had to leave the trial in July 23. This was nothing to do with the drug but my immune system got the better and I contracted pneumonia and sepsis. At this point i had Chronic lymphocytic leukaemia (CLL) for 12 years. I had venetaclax prescribed but really struggled with it as my tummy couldn’t tolerate it, and now i am on another trial, Nurix 5948. This is a wonder drug and is great and I am doing really well on it. So, i would consider both, but i favour Acalabrutinib.
Just for info, Venetaclax was originally in a trial with Ibrutinib the trial was called Clarity and I was also on that trial. Its very succesful for some people.
Thanks for your comment, i have chosen Obinutuzumab (infusion) and Venetoclax (tablet)
Ive just got to confirm with my key nurse and get the ball rolling…hope everything works out for you
Thank you for your comment, i hope everything is ok for you now and great news that you survived the pneumonia and sepsis…all the best for the future