Essential Thrombocythaemia with Concomitant Waldenström Macroglobulinaemia

G’Day to all.
I am 80 years old next September and live in Melbourne AUS
In late 2021 I was diagnosed with Essential thrombocythemia (ET). and started a course of HYDREA 500mg tablets in Feb 2022 in Dec 2022 I had a Bone Marrow Biopsy that showed I now have Waldenström macroglobulinaemia (WM) .
I believe to have both is very RARE, can any body please tell me if you know of any other person with both who I can discus our problems ??
My Haematologist is very GOOD but as he said because our population it very small we do no
see a lot of people with Waldenström macroglobulinaemia (WM).
Very Kind Regards
Keith DAWS


Hi Keith, hopefully someone on this forum may have experience of both Essential thrombocythemia (ET) and Waldenström macroglobulinaemia (WM), as you say it probably is very unusual to have both. I don’t know if you are on Facebook , but there is a very active Waldenström macroglobulinaemia (WM) group “International Waldenstrom Macroglobulinemia Foundation” (I belong to that site) where it might also be worth posting your question (it’s primarily a US Waldenström macroglobulinaemia (WM) audience but lots of other nationalities on it too). They also have a website (there is a UK only group and charity but it’s much smaller )


Hi @kwDAWS @CaroleCW has given you a great response.
I hope others can help as well.
Yes, we are a UK forum so treatments, drugs etc might be different with your diagnosis.
I am so glad that your haematologist is so good, it certainly makes a difference.
Take care of yourself

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