Hi guys my name is Joanne and I was diagnosed with et roughly 24 year ago. My journey has been good until last year when my hemoglobin counts started dropping, my consultant advised me to have my 3rd bmb which showed mild fibrosis the verdict was still et and not yet reaching mf.
I’ve always had platelets on the higher side so I was to carry on using anagrelide and he introduced a new drug into the mix to treat the hemoglobin which I inject on a weekly basis and is working very well. My platelets started to drop and sat at around 152 to 250 which was great but today they were 95 dropping from 151 2 weeks ago I’m a very anxious person and have severe health anxiety and it’s tipped me right over the edge so I thought I’d reach out for some support.
Thanks for reading x
Hi @Lttlmystry a great big welcome to our forum, you have certainly come to the right place for support as you are now part of our form family.
It must be extra difficult for you if you have health anxiety.
Have you any support?
Do you have a specialist nurse contact you might contact or your consultant and say how anxious you are about your results.
Waiting is horrible and anxiety making.
If you would like to speak to someone the Blood Cancer UK Support line is there on 0808 2080 888.
Please do let us know how you get on and really be kind and look after yourself
Yes and no I am currently talking to talking matters Northumberland but its about other things that’s gone on in my life I have someone ringing at 11.30 from here on Friday not sure if I can wait that long tho xx
Hi @Lttlmystry Don’t forget the Blood Cancer UK support line is there if you would like to talk to someone on 0808 2080 888 and we are all here for you, you are part of our forum family too. Think of us as your comfort blanket. Thinking of you loads xxx
Hi @Lttlmystry and welcome to the forum. It’s great you have reached out for support and there is plenty of that on here.
Please give the support line a ring today as @Erica suggested - you don’t have to wait until Friday and may help if you talk things through?
Please keep posting and let us know how you are doing. We are all here for you X
How are you doing @Lttlmystry?
Good morning, @Lttlmystry, we do hope you’re doing okay? We appreciate it sounds like it’s been a difficult time recently. We just wanted to reach out to let you know that we’ve sent you a direct message on here. Please do let us know if you’d like us to call you today- we’d be happy to. Do take care of yourself.
Best wishes,
Tanya.