I was diagnosed about 18 months ago and take my daily aspirin. I am coming under increasing pressure from my consultant to start taking medication.
Having read the leaflet about it, I really don’t feel happy taking chemotherapy drugs as I’m already on Methotrexate. They want me to take HU. My platelet count wobbles between 500 and 550 which doesn’t seem too bad compared with others I have read about.
I travel a lot, mostly to tropical places, so plenty of sun etc and I read that HU can increase the chances of skin cancer. I cover up with thin cotton shirts but the sun still powers through. I have a huge bucket list to complete.
Has anyone lost hair, become nauseous or any other side effects?
I don’t like feeling under pressure like this but feel it should be my decision whether or not to take what seems to me, to be a poisonous substance.
Any advice would be most welcome please.