Hello, this is my first time here. My 22 year old daughter had autologist stem cell transplant approx 11 weeks ago. (Sophia was diagnosed with hodgekins Lymphoma 18months ago and had aggressive chemo initially then ABVD went into remission , relapsed a month later, had further chemo , was found to not to react well to cisplatin and then given a targeted drug and chemo which she achieved remission)
She did not sail through the transplant, experienced neutrophil sepsis, c. diff and a skin infection. (Had a few days in ICU) Also was on a feeding tube for a few days.
Now 11-12 weeks on Sophia is still experiencing chronic fatigue, very painful muscle weakness (even turning over in bed) walks about the house, having to pace herself. At times walks bowed over. Tries to walk small distances outside, but rarely goes out. Suffers from gerd after LEAM(finds it sometimes difficult swallowing food, sore throat. Only eats 2 or small portion of food and cant stomach protein drinks.
She is usually a very positive person and wants to get well (Sophia had just completed her 2nd year at medical school when she was diagnosed. Loved playing tennis, sports and never drank ) we have asked for help , physio tratment and awaiting for someone to call, i(i was hoping it would be a physio that had some speciality of cancer/stem cell problems but i was advised it would be a generalised physio?
We would like to know if what Sophia is experiencing is normal 11-12 weeks on after her STEM Cell transplant. She has use of a wheel chair and her consultant would like to see her out of it come December but with what she is experiencing it is difficult. She so wants to become strong again, be rid of cancer (PET scan in December) and return to Medical school.Any advice ? Specialist phsio (south tyneside area)? Is this normal? Problems eating?
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Hi @bridge I have responded to your other post.
Personally I reckon 12 weeks is a very short time after any type of stem cell transplant, Sophia and her body have been through a lot medically, emotionally, physically and practically.
Really look after yourselves
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