@Bloodytall Just the 3 cm of marrow with a little bit of bone at the end in my case.
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I’ve gotten my diagnosis which is high risk Monoclonal gammopathy of unknown significance ('MGUS'). Not a bad result, I guess. I’m still a bit confused as to what that means. The dr said it’s about a 30% chance in 20 years that it may develop into active myeloma. It sounds positive but then I’ve read that it could develop in a couple months. I feel like I’m in limbo. Does anyone know if this is something to be concerned about? Or am I worrying about nothing?
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Hello again @macncheez, I’m sorry to read of that diagnosis but so glad you have more information to work with now. Feeling like it’s not a bad result is a great way of taking this news, but I imagine no one would want any sort of diagnosis. Hopefully having a diagnosis might relieve anxiety about worse-case scenarios.
You are not alone in having Monoclonal gammopathy of unknown significance ('MGUS') and from my non-medical understanding it is considered a sort of non-cancerous blood disorder—here’s the Blood Cancer UK information about it for when you want to read more: What is MGUS | Blood Cancer UK
I would say try to stick to official blood cancer organisations as I doubt you’ll find much that is specific to you and your blood cells at the end of a quick google. I’ll just share the Myeloma UK information about Monoclonal gammopathy of unknown significance ('MGUS') to hopefully offer some reassurance that it is benign and non-cancerous: MGUS - Myeloma UK
Have a look around the forum @macncheez as I know of other forum members with lived experiences of Monoclonal gammopathy of unknown significance ('MGUS') who might reassure you, just use the search box at the top or Related Topics below to find them and ask what you need to.
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