Hi Guys, I was diagnosed with Chronic lymphocytic leukaemia (CLL) in Aug 2017 & had been on watch & wait until April 2021. My haematologist decided to start me on treatment due to my red blood cells depleting (less than a 100). I started a six months course of obintuzumab, which I had to go to the day unit at the hospital for (administered by drip). Three weeks later I was started on 12 months of Venetoclax (tablets). I finished my treatment in April 2022 & when I went to see my haematologist on the 17th May 2022. She told my 8 no longer had Chronic lymphocytic leukaemia (CLL) in my blood (all aspects of my blood were at normal levels, as before I started with Chronic lymphocytic leukaemia (CLL)). But that doesn’t mean it can’t come back in the future (but hopefully won’t). My haematologist is going to monitor me every 3 months & see how things go. I no longer have any medication to take. So as far I’m concerned everything everything has turned out positive !
Hi @Dusty that sure is positive news and also good news that you will still be monitored by your haematologist.
Now enjoy and live your life, although I still get anxious before all tests, results and appointments.
That’s great news @Dusty. Great that your consultant is keeping an eye on you to. Take care X
Wonderful news! So important to appreciate the good news. Delighted for you x
This is fantastic news @Dusty
What brilliant news and I am so envious. How I would like to hear those words.
I was diagnosed with Chronic lymphocytic leukaemia (CLL) in 2018 and was watch and wait until August 2021 when I started with Acalabrutinib. My blood numbers are in the normal range now but I was told that I would continue with Acalabrutinib as long as it was working.
Congratulations Good news indeed
Truly momentous news @Dusty . So very pleased for you and a filip for the rest of us
That is so good to hear. I don’t recognise the treatment you have had but I had treatment in 2016, so I am sure there are lots of changes since then. Good luck and fingers crossed for a long remission.
Thanks, yes that’s why I wanted to post this positive good news to give other people hope & confidence !
Thank you, it’s good to put positive news on here so people can see there is light at the end of the tunnel & not everything is negative about dealing with cancer. Stay positive & hopefully your treatment will bring you the news you want ! Look after yourself.
Thank you, it’s so important to put the positive news on here to give people hope & confidence !
Thank you, good to put the positive news on here too ! Hopefully it will give people hope & confidence !
Thank you. It’s good to put the positive on here too & hopefully it will give other people hope & confidence when having their treatment !
I had targeted chemo which was a combination of the two drugs obintuzumab & Venetoclax. I had one hiccup at the beginning of the treatment with the first dose of obintuzumab. Which totally wiped out all my white blood cells & reduced my red blood cells to 69 (my normal was 130). I had to go back to the hospital to be given 2 pints of blood & give myself white blood cell injections for the next 7 days. They had to build me back up, so I couldn’t have the obintuzumab the following week but had it the following week. And from then on everything went really well.
Dr Camacho asked me if I would go on one of the drug trials for Chronic lymphocytic leukaemia (CLL) that she was running at Blackpool Victoria hospital & I said yes I would. But because of covid 19 she wasn’t starting any new trails, so she decided to start me on the targeted chemo.
What splendid news. I too posted when I had good news and people love a good news story. You do realise that you have to celebrate it each year and it is like having two birthdays in one year. My good news came on my birthday so I just have one double birthday instead!
Best wishes Grandma Jo
Fantastic , so pleased for you!
Great to hear some positive happy news
I’m so pleased for you that your treatment has worked so well for you, I had exactly the same treatment with the same outcome and finished 16th April 2022. What the haematologist didn’t tell me is that I have zero antibodies to fight infection. I have been in hospital for almost 4 weeks now, came in with a chest infection and caught covid which is proving a challenge for both Haematology and Respiratory departments which are both fighting my corner. When I get out I will be going back to shielding I can’t have this again. All I am saying is take care of yourself.
Gosh - sounds like you have been hit from all angles! I hope things start to improve soon so that you can get home😊
Oh @Mickbrit that is so, so unlucky, Covid and respiratory conditions can take a long time to get over.
Be kind to yourself.