Have you been or are you on a clinical trial?

Clinical Trials
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Hi all,

We’d love to hear from you if you are currently on, or have previously been on, a clinical trial. What was your experience?

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Thanks for the info.

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Hi @Liamdaniels thanks for posting and a great big welcome.
I really look forward to hearing more about you.
Look after yourself it is the biggest lesson I have learnt on our forum.

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Hi to all from down under in Melbourne Australia, l was originally diagnosed with Chronic lymphocytic leukaemia (CLL) almost 3 years ago. My lymphocytes had steadily increased and in December 2020 I had a series of blood tests CT scans with dye in them and a Bone Marrow Biopsy all of which confirmed that my Chronic lymphocytic leukaemia (CLL) had progressed and included what is knon as P17 Deletion. Fortunately I was under one of the best Haemotologist in Australia and she put me forward to take part in a Global Trial program that consisted of three cohorts one of which was Chronic lymphocytic leukaemia (CLL) with P17 Deletion. All my test results were sent to Singapore and on to New York. Within a matter of days I was accepted into the Global Trial Program. The trial included being on Venetoclax for two
years in conjunction with Zanubrutinib. My recent round of bloods CT Scan and Bone Marrow Biopsy have confirmed that I am in deep remission. All my bloods are in normal range and no delectable trace of P17 Deletion. Originally I was give 6 months to two years to live. My live expectancy is 8 to 10 years and I will remain on Zanubrutinib for the rest of my life.

The best part of being on the program is that it is fully funded by the Trials program. Otherwise it would cost about $AUD 300,000 a year.

In my humble opinion if the opportunity exists to be part of a Global Trials Program…
Go for it!

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Also ad a result of the medication I am on my immune system was completely destroyed and I had to have all my childhood vaccinations again as well as flu, pneumonia,Astravenia,
pzyer and mernda Covid-19 vaccinations. I was also strongly advised to have two shots of the non live shingles shots three months apart

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Hi @JohnCP thank you so much for sharing your story, and glad to hear that you have done so well on the clinical trial.

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