My name is Heather. I was diagnosed with Chronic myelomonocytic leukaemia (CMML) 4 years ago, but l’m sure l have had it for a long time. I have had episodes of tiredness spanning probably 10years. The condition was found after routine bloods for a hip replacement. My word, the initial consultation was appalling, l was given a leaflet and told to ‘read that’ and treat it like Asthma! Thankfully l was transferred to a different consultant who has been wonderful.
I take HU Monday to Friday , bloods every 8 weeks or so with regular telephone calls.
I found your site by accident and it has literally been my ‘go to’ and a life saver as my husband does not understand and does not want to know.
Thankyou so much to you all, l will keep in touch and please keep telling me about yourselves. Thankyou friends
Oh @Elliott1 I am so glad you have found us and had the courage to post and welcome to our forum.
Yes, I was given my diagnosis by a gynaecologist who said ‘I can do no more for you’ so I wondered if I would make it home and immediately wrote my will and funeral music.
That was 21 yrs ago.
Also to whip to the end of your post my husband is a head in the sand kind of guy and has never raised the subject of my leukaemia in the time I have been diagnosed. That is just how he is, there is no right or wrong way of dealing with things but it can make it feel a lonely place sometimes and why I value our forum so much, i can say how it really is for me.
Yes, I have had a variety of consultants, with different approaches!!!
Please do keep in touch, I find it often is the fears, emotions, thoughts and practicalities that bonds us.
I look forward to hearing more about you, and yes, I think I can say we feel like friends on here
The Blood Cancer UK support line is there for you on 0808 2080 888 and we will be about on here over the holiday period.
Be very kind to yourself
Thankyou so much Erica, l’m having a few tears here, with the relief of finding you and your reply which is so helpful and reassuring. I too have had thoughts, shall l start knitting a jumper for my granddaughter, will l have time to finish it!
I had a review at the hospital yesterday, an awful 3 weeks since l got the appt - not sleeping, ibs playing up, feeling sick, knitting frantically!
To be told, no change, tweak the tablets slightly, review 6 weeks with just a phone call - what a relief.
I will certainly keep in touch and thankyou once again .
Hi there
Some people don’t know what to say and your hubby maybe afraid of losing you and would rather not talk about the elephant in the room. It’s easier than accepting what is going on
We all are different in handling situations given to us.
My kids get fed up of hearing me talk about myeloma 
I will tell anyone that will listen
What I have learnt is people can only take in bits of information and will stop listening at the scary stuff and that’s ok.
Sometimes it’s just planting thought seeds then leaving them to grow.
I would say live for today this moment in time is all we truly have. Keep knitting those jumpers and do all the little things that give you pleasure and joy
Maybe do coffee and cake with hubby or a nice walk or whatever you enjoy doing and don’t let your cancer take over those precious moments.
Live with the cancer don’t let it take over be in control
You got this 