Update: my sister went to the consultation with my mum. The first panic was mum’s haemoglobin was down to 41 though platelets had improved in the absence of treatment. They wanted to admit mum but she refused and was given a unit transfusion on the day unit and had another 5 or 6 units since then and a follow up haematology consultation so a lot has happened.
1st consultant (cos you never see the same one twice) was very surprised by how well mum presented given her blood results and the hospital discharge letter. He wanted to get her Hb up and was talking about a bone marrow biopsy.
2nd consultant: very abrupt and unwilling to answer questions, assumed we understood medical terms we had never heard before. Didn’t even raise option of biopsy and initially told us it was pointless because mum wouldn’t be well enough for the treatment. Later seemed to say might be worthwhile to see if there is any marrow fibrosis but said we should wait and see at the next appt in 2 weeks. It felt like she was assessing the patient the hospital discharged not my mum sat in front of her.
Feels like we are no further forward. Mum’s Hb is creeping up slowly but now her platelets seem to be falling and latest blood results (requested from nurse on transfusion unit) show high creatinine and ferritin of 2600, which to a layperson seems a bit high on a “normal” range of 12 - 233.
One of the haematology nurses is supposed to give us a call tomorrow to arrange the next transfusion dates so I will ask what it all means. Don’t really expect any answers though.