It’s so understandable you’re feeling like this @Amz. I’m sorry to hear that you and your mum are going through what sounds like a really tough time. It’s so understandable that you’re feeling like you’re getting mixed messages, it can be a complex condition to understand.
Firstly you may find it useful to have our high-grade NHL and our low-grade NHL booklets to hand - as you may know, Mantle cell lymphoma is a type of lymphoma that falls between low-grade and high-grade NHL. Treatment will be different from the standard low-grade NHL treatment.
Low grade NHL
High Grade NHL
I also wondered if this information from Lymphoma Action might help clarify it a little - Generally, this type of lymphoma is difficult to cure. It almost always relapses and needs more treatment. People who are fit enough to have intensive treatments usually have a better outlook but there are increasing treatment options, including newer, targeted drugs, for people who cannot have such treatments. Targeted drugs also offer new treatment options if the lymphoma relapses. You can read more of their Mantle Cell Lymphoma information here
So @Amz, in most cases, Mantle Cell Lymphoma isn’t cured, as it comes back but there are further treatments which can be used to help treat/manage the condition. The treatment pathway used will depend a lot on the individual. There’s some general information around this on the page I’ve linked to above. If you want to talk this through with us at any point, please don’t hesitate to get in touch with our support line.
As you’ll know, your Mum’s treatment team such as her clinical nurse specialist or consultant are the only people who can talk to you about your mum’s condition, treatment and prognosis, in the context of your Mum’s individual circumstances. As @Nichola75 said, do you think your mum would give permission for you her treatment team to talk things through with you, as it may help you to feel reassured if you feel more informed.
Just in case it can be helpful for you or your mum at all, we have a section of our website for people who are newly diagnosed with blood cancer, here
We also have a section for people who have a loved one diagnosed with blood cancer, here
Lastly @Amz, we have a section around mind and emotions which includes guidance on ways to look after yourself and get emotional support.
If you would like to talk anything through with us at any point, or if there’s anything we can do to support you and your mum, we’re only a phone call away on 0808 2080 888.
I really hope this forum is a useful source of support for you now and going forwards. Take care