Make sure you behave for your mum and Dave @Ells! Do as you are told and take care. Look forward to hearing how you are getting on. Sending lots of special wishes X
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Hi @Nichola75 @Erica
Many thanks for the good vibes… 
I’m being good… I’ve started putting my nails back on its making me feel more human but taking forever 
I’ve booked the nurses appointment for next week so 1 job done… Exercises are really hard but I’m trying which is better than not…
I’m feeling very spoilt I’ve had 2 bunches of flowers, numerous messages of well wishes and I just think it’s only me and I’ve only had an op I’m fine really… Atm nothing has changed but I’m sure it will as time goes on…
I do know 1 thing I will be so glad to get this dressing off next week its so irritating
Happy errr Tuesday everyone I hope you’re all doing well Xx
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Hi @Ells you deserve to feel very spoilt.
Oh, I bet it will be so, so good to get that dressing off next week.
When I had a skin graft the dressing had to stay on for what seemed absolutely ages and I ended up spraying it with air freshener !!!
Enjoy your flowers and messages, anything to take your mind off that irritating dressing.
Look after yourself and keep persevering with those exercises.
Sending you healing vibes. xx
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Hi @Erica
Thank you… I don’t feel like I deserve it but I am enjoying being spoilt
I’m trying with the exercises but I think they’re trying to do me in
I now have my nails back on so I’m feeling much more human
It does seem like forever to have it off but it’s only been a week since the op and only another week until I see the nurse…
The dressing is huge as I bled alot afterwards so it’s irritating all across the bottom of my back. That was another story… They went oh you’re not bleeding everything is good and then looked at the bed nice patch of fresh blood. None of them could figure out how it happened so I ended up with a massive dressing
Today I decided I’ve got a week left of mums help so I’m going to make the most of it and try to figure out ways with her to start fending for myself so I’m not putting on dave when she’s gone. The very least I want to try and go back to what I was doing before even if it takes me a lot longer.
Happy Wednesday everyone
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Oh @Ells I am so glad that you have got your nails back on, doesn’t it make a difference.
I wore nail varnish all my working life and then had a gynae op in my 50’s and obviously had to take it off.
I woke up from the anaesthetic and never wanted to wear it again, very spooky.
Blood really does spread and look so vivid against white sheets.
I think it is so important to get some form of independence back as soon as you can, but I find it is so difficult not to overdo it and then go backwards. I bet those exercises are trying to do you in, I really feel for you.
I bet it feels forever till you get your dressing off.
We are here for you to vent how it is for you over the next week.
Yes, Happy Wednesday @Ells
Has anyone else had to have a dressing on for what seems ages?
I’m with you and @Erica - nails are essential and for me, perfect eyebrows to!
Remember @Ells, only do what you feel able to.
Take care X
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Well hello @Nichola75 & @Erica
I can’t believe my mother is going home tomorrow… The dressing is finally coming off on Wednesday and I can actually have a shower rather than a strip wash 
These stockings are driving me nuts and are doing me no good what so ever my ankles puff up all day and for the little while I have them off I get all the fluid off them… And in this heat well totally fed up with them and still have 2 weeks to go…
The exercises are still trying to do me in but I’m progressing in other areas I can do the washing now daves doing all the heavy lifting for me just need to figure out how to do the washing up and I’m back to where I was before the op
Went for my first walk today walked down the drive and around the corner to the lamppost and back got really far 
felt like a marathon though…
My nails are still on so really happy and oh yes eyebrows too are a must I’ve been doing my own since I stopped going to MK to have nails done just never found a place over here and still trying get mine right even though everyone says they’re fine I don’t think they are…
We’ve now found a novel way for me make my own drinks and get them up stairs as I’m only allowed to sit for short periods or time… My thermal drinking cup with lid of course and a bottle bag
I think now I know where I’m standing after this op too what’s been fixed and what’s pain from the blood cancer, which is something we have never been sure of which I am pleased about… I’m also pleased my bladder has been sorted out something I had never mentioned to anyone other than my mother and something I was so worried about but instantly fixed 
…
I think I’ve rambled on enough for one day but really can’t believe it’s been a week since I last updated you all… I hope you’re all well… Happy Monday xx
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Wow @Ells you have done brilliantly in a week.
Oh, I bet that shower on Wednesday after your dressing is off will feel the bestest shower ever.
Oh, I bet those stockings are driving you absolutely nuts.
Ok, I realise that you are struggling with the exercises but you really are making progress in other areas like walking and it is just one lamp post at a time.
I am impressed with your thermal drinking cup idea.
I also had problems with my bladder and I had an op when I had a hysterectomy a few years back.
The difference was so miraculous to my peace of mind.
Happy Monday/Tuesday/Wednesday to you too and baby steps of progress are so good
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Such a good post to read with so many improvements in so many ways! They may seem like small steps but they are huge in so many ways!
I’m so pleased you can distinguish between different pain!
Now, please no full marathons as yet. To the lamppost is just perfect for now!!!
How are you feeling about your mum going home?
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Hello Ells
I can’t pretend to be ofait with jak2 but I have some insight as to how to react. You just do! We’re used to having a modicum of control of our own lives and then, ‘just like that’, it’s gone. I can state all the platitudes around control is a mirage but you’re totally flawed. Not just you but your family anf friends also. The answer is so simple: You just do - the trick (and believe this is a humungous trick) is not to become overwhelmed.
Welcome to the forum and I will send you every hope x Laura (DLBC lymphoma stage 4 -
relapsed)
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Thanks @LauraMM so true, we just do, but not become overwhelmed, which can be the hardest part. Take lots of special care of yourself and one foot in front of the other an minute at a time sometimes.
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Thank you I do feel much better I’ve been pottering today.more clearing up the bedroom so dave can come back to bed as he’s been sleeping on the sofa as he didn’t want to hurt me.
Omg yes I so can’t wait for the shower and has it happens it is my birthday so it’ll be a birthday shower
This is what I think the exercises are going to be hard I think it’s the arthritis and blood cancer causing those issues as well as the op but I can stand a but longer and walk around the house better.
The thermal cup. Idea was daves as I had asked him to see if he could find somethonf in the shops to help me and he came.up with that as he couldn’t find anything.
I’m so happy my bladder is now working properly I was worried.
I promise no marathons I don’t think I could do them just yet or even ever… I’ll stick to my.lamp post progress
I have struggled with my condition alot had counselling and then came on here which has helped me no end with accepting how I am. Now I’ve had my op we can finally move on and get on with our lives as we will finally know how I’m going to be… I know it’s still early days but I doubt much will change… Maybe I will get back to walking further again but pain wise I think I know now this is going is be it once the bruising has healed up… I’m now trying to stay positive even though it seems like I’m not I feel positive at the moment about what I’m able to do…
Happy Tuesday everyone… Xx
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Oh @Ells I hope the removal of your dressing goes as well as it can on Wednesday.
Also a great big very happy birthday wish and very luxurious birthday shower wish to you on Wednesday.
I am sorry that your mum has gone home before your momentous birthday.
They (whoever they are) say walking is the best exercise, but pottering is good too.
I hope you get some help with your pain management.
You are really doing so, so well, yes, it’s one positive lamp post at a time.
I’ll be thinking of you tomorrow and I will raise my hot chocolate to you tomorrow night.
The best birthday present ever eh!
All you can do now is take a day at a time and small steps. You are doing amazingly well!!
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Hi @Ells I am singing happy birthday to you, luckily you cannot hear me !!!
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Happy birthday… hope you have/had an awesome time celebrating
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The removal went well I discovered I have 2 scars one left and one on the right. I now have a small dressing on the top of the right one but I am shortly going for the birthday shower which got delayed from this morning as I had physio… Managed to get a cancellation… That went well as I’ve had so much of it over the last few years and still have all the paperwork there’s nothing more they can give to me so I made the decision not to have anymore appointments so someone more needy could have them… However it’s open for 4 weeks for me to make one if I feel I need one if I don’t I’ll be discharged… I’m to just do my exercises when I feel able to as I’m struggling… They’ve accepted as I’ve got blood cancer and the side effects of that it’s much harder for me to do things. I got referred for help not because I’d had the op but because I have arthritis in my.back Wtf…
I’m really missing mum but we always do miss each other after our extended visits… We celebrated birthdays at the weekend as daves son turned 12 last week so it was a joint one…
I’m not sure who they are either but they have alot to answer for sometimes
I’ve done my walk today it was around the doctors surgery as the nurses office was a bit oh a hike
Thank you both I don’t feel like I’m doing well but I guess I want to do more than I am but need to realise its only been 2 weeks so I really am doing not bad at all…
@Erica I did hear something earlier couldn’t of been that bad as it was around the time I dropped off to sleep
@Rammie18 thank you it’s certainly been a different kind of birthday celebration this year but I’m looking at it as new start
Hope everyone is having a great day…
And now its time for the long awaited shower and removal of the dressing sticky stuff xx
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A great big happy birthday to you!!!
We never realise how well we are doing which is why we need people to remind us x
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Hi @Nichola75
Thank you so much. You are absolutely right.
Today I’m on my own for the first time but tbh it doesn’t feel like it. Dave is constantly checking to make sure I’m OK and so is mum … I’m slowly managing to do the washing 1 load done just need to hang it it’s taken all morning but hey the day is going quick and I’ve finally got dressed… Then it’ll be the washing up… Managed a bowl full yesterday so need to try and finish what I started plus yesterday’s dinner plates… This could take some time but I got all afternoon lucky I don’t have to be anywhere …
I’m slowly getting back to where I was before the op which is my aim… Xx
Oh i finally decided to tell all my Facebook friends what has been going on in my life over the past few years as I’m not one for splashing my life all over it… It was my plan after my op to tell everyone about the pain and blood cancer diagnosis which I did and surprise surprise most people have ignore the diagnosis and just focused on the fact I’ve had the op… Mum said if I want a reaction then post a separate status but I’m not going to do that 1 status is enough if people choose to ignore its their issue not mine… I’ve told them and that was my aim… I don’t know what you all think about this… But I decided the time was right now I can cope if anyone does ask questions…
Happy Thursday everyone 
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Wow, @Ells I cannot get over how well you are doing.
I cannot help laughing at your mum still checking up on you and then Dave checking up on you as well.
Yes, washing up a bowl full at a time.
It will be very interesting to see who responds to your updating health post on Facebook ???
Yep, Happy Thursday to you too.
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