First of all, welcome to the forum, although I’m so, so sorry you’ve had to seek us out. I know from experience of an Acute myeloid leukaemia (AML) diagnosis that you and your husband must be feeling terrified, shocked and so worried about the children and the future. It’s an horrendous experience, so I’m glad you’ve come here for support.
I want to repeat here what my GP said to me not long after my Acute myeloid leukaemia (AML) diagnosis. Acute myeloid leukaemia (AML) is ‘eminently treatable now’. Don’t be too concerned about not hearing the ‘cure’ word - consultants don’t seem to use that word often, because none of them have actually got a crystal ball to make absolute promises there will never be a return of the illness. They mostly seem to say ‘treatable’. And whether via chemo or chemo and a stem cell transplant, a good proportion of people are now able to get into remission and put the illness behind them. It is usually 6 months of intensive treatment mostly in hospital, and then months of recovery at home - a big chunk of life - but we do what we need to to get to the other side, huh?
Just for comparison, I’m a woman who was diagnosed at age 50. I had the chemo plus stem cell transplant (I had 3 gene mutations with a poor prognosis unless treated by transplant.) And here I am over 2.5 years post-transplant, fit and healthy, and with the news at my last appointment that at this stage, the leukaemia is highly unlikely to ever come back. Your husband is younger and probably fitter than I was, and the younger one is, often the better things are.
Please dont Google too much or read the statistics online. A consultant told me they are mostly out of date and don’t reflect the recent better outcomes through advances in treatment.
And be aware that treatment is a process with an inevitable amount of ups and downs, and hurdles along the way. Your husband will likely get an infection or two - that is the bane of the lives of all Acute myeloid leukaemia (AML) patients, because the immune system is compromised - and he may well feel very rough from the chemo (although not everyone does) and the whole treatment process will plunge you into a world of endless drips and blood tests and people and appts. But you get used to the new 6 month medical bubble, and it is if course worth it to get better. But it can be quite an emotionally and physically difficult time, with many ups and downs, and bits of bad news and then bits of good news - quite a rollercoaster, unfortunately.
Perhaps your husband and yourself could have a think about strategies or techniques to deal with the worry of it all? Always best to be prepared. Support networks; yoga; meditation; self-hypnosis; chocolate; smashing bottles - whatever works for you. (Although I don’t think you can smash bottles in the hospital room!) And there are threads on here about what to take into hospital to be comfortable and entertained, which might be of use.
And maybe think about contacting Macmillan about financial support/benefits help, or ringing the helpline here for emotional support or any other advice (0808 2080 888.)
And please remember you’re not alone; we’re here to help; it is possible to get through this awful period, and that many people do. And your husband will be in very skilled hands.
Thinking of you all. Please stay in touch if that would help.
Very best wishes