Hi Erica and all… i havent been on for a while havent had a good year 
my Treatment has been changed …still on interferon. But also agalaide and thankfully platelets are better i am so tired all the time but greatfull there’s finally a change…i hope everyone is doing okey … my son and grandson are taking me to the golf tomorrow 9 hole 
i dont know how long i will last …but i will have a good try …Smiddy 
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Oh, great to hear from you again @SMIDDY sorry to hear that you have been struggling with tiredness (perhaps fatigue).
Oh enjoy the golf with your son and grandson tomorrow, family time is priceless
Please do keep posting how you are doing and really look after yourself.
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Hi @SMIDDY. Great to hear from you and to get an update. I hope this year starts to get a little better da by day. Enjoy golf tomorrow - the weather isn’t looking too bad 
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Thank you …i am never sure if i am posting properly… well i went to the golf and managed 6 holes so going for 9 next time …thanks again everyone i hope you are all.well Smiddy…
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Oh @SMIDDY never worry about posting properly.
The important thing is that you always post.
It sounds to me if you did rather well on the golf course and I noted you used the words ‘next time’ so you must have enjoyed yourself.
I find fresh air and being with family is so, so good for me.
Please keep updating us.
Be very kind to yourself
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Hi i hope everyone is as good as can be ..i havent been on for awhile just feeling a bit of a loss right now .. i am on angralide.. injection have been stopped i suppose thats a good thing my platelets are a bit up and down
But okay 
but i feel i am just been pushed aside .. i go to a different day clinic .i just feel
Know one cares if you dont ask you wouldent know .i suppose i should be grateful things are a bit better.. but i dont even see a consultant..
Sorry 
i am having trouble getting my prescription from last wed .ithink its just set me off a bit .. take care everyone
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Hi @SMIDDY good to hear from you again.
I think your feelings are very natural and as you say made worse by your prescription issue.
I have felt exactly the same in similar situations and differing ones in medical situations.
I do like to have a rapport with the staff, which is helped by continuity, I don’t like change.
I have felt pushed aside, abandoned, uncared for, I also go to a different day unit, I feel a number, not a person and yes, I don’t even see a consultant.
I just take responsibility for myself to ensure I give the medical staff the information they need and I ask the questions I need.
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Thank you Erica.. i sometimes think people think i dont have blood cancer is like a bad word 
But its good to know i am not alone.. thanks
again i am getting my prescription tomorrow
some kind of mix up
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Hi @SMIDDY perhaps mix ups happen, be kind to yourself
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