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Iron supplements

We have been warned at MPN View patient forums not to build up excess iron by eating breakfast cereals containing iron, in other words, any breakfast cereals at all.
I could just about live without breakfast cereals but I hope someone can identify one or two obscure brands that do not contain added iron.
Also, are other foods overloaded with iron? And has anyone run into trouble from iron overload?
Thanks to anyone who can throw light in this matter.

Jumbo4

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Hello @jumbo4. Thank you for raising this issue. I have serious iron overload problems, due to all the donated units of red blood cells I have required over recent years as a result of my worsening anaemia. I have end stage Myelofibrosis and there are no other options when my haemoglobin level drops extra low. Interestingly, my haematologist has never advised me to avoid iron fortified breakfast cereals! I will ask the question at my next appointment which is coming up soon. Most people, when they hear of my severe anaemia, think that I must be low in iron, but I am learning that to have a high iron level is equally serious, if not more so. Warm wishes. Willow

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Thanks Willow. You highlight a big problem. We can’t get enough haemoglobin! And like you none of my numerous haematologists has mentioned iron levels except the one who first diagnosed me seven years ago.
Even Kellogg’s Corn Flakes now contains added iron.

Jumbo4

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I hope somebody can answer your question! I look forward to hearing others suggestions that hopefully fill your cravings :blush:

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Hello @jumbo4

You could eat porridge oats (jumbo ones, even?!) and maybe make a muesli from them too? And a friend of mine makes her own granola - am sure there will be lots of recipes online, where you could avoid iron-rich ingredients like dried apricots. I think I’ve even seen online recipes for your own cornflakes, if you’re up to having a try yourself. Edit: Yes, have just checked - if you Google ‘how to make your own rice crispies’ for example, lots of recipes come up.

Yes, I’ve always been puzzled by breakfast cereals - on the one hand they fortify them to high heaven, whether you need it or not, to make them ‘healthy,’ and on the other, they add masses of sugar! I think the only sugar-free cereal is the ‘delicious’ wheat scouring pad that Ian Botham likes!

Good luck managing your iron intake.

All the best
Fullofbeans

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It seems my body has Polycythaemia vera (PV) vs Anaemia currently as a main event.

I feel like most of my symptoms are due to my iron being really low… but iron tablets dont work and the only thing that did was a ferinject which my haemotologist said I can’t have as it will raise my red blood cells up…

Basically been told to ride it through and just deal with in…

It’s proper annoying

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Fullobeans:

I will have a go at your ideas!

Jumbo5

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Rammie18

Anything that raises red blood cells sounds good to me but no doubt there are bad side effects with most remedies!

Jumbo4

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