Is anyone else on obinutuzumab lightheaded?

I began treatment for Chronic lymphocytic leukaemia (CLL) this week, enjoyed a very exciting reaction on day one, felt like a kitten on day two but am now permanently lightheaded. Can I expect to feel spacey all the time? Has anyone any tips?

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Hi @Ann1 a great big welcome to our forum and a good question and I hope others will be able to share their experiences
This is a very good question for your specialist nurse, GP, consultant, and as I am aware it is a bank holiday weekend, the haematology ward at your hospital.
You ask about tips, I would say be very aware you are light headed and don’t turn corners too quickly, take extra care with baths/showers, on the stairs, carrying hot pots and pans, getting in and out of bed, turning your head too quickly ets.
Please do let us know how you get on and take lots of care

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Thank you Erica for the welcome and the advice, no roundabouts for me! I checked with my excellent team, and they were reassuring. Will Easter eggs help do you think?

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Oh @Ann1 this is definitely not a medical response but I think Easter Eggs are definitely what I would go for !!! xx

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