Hi, I was given an APML diagnosis in December of last year, and my treatment was just completed in April.
At our most recent appointment in May, my doctor informed me that my bloodwork was normal and I was in MRD-ve remission.
I recently received a message from a coworker I was with yesterday informing me that she has recently been diagnosed with shingles, though she is only experiencing the rash stage at this time rather than blisters.
I am aware that I would have required to get in touch throughout my treatment for arsenic trioxide and ATRA, but does anyone know if that is still the case now that my treatment is over?
Why do these events always occur when everything is shut down.
Hi @Waters8O glad to hear you’re in remission! Hopefully given that you’re in remission your immune system is getting a bit stronger. You may find it useful to read our staying safe page here - Blood cancer and staying safe | | Blood Cancer UK. It explains how you can’t catch shingles from someone who has it, but you can catch chickenpox from someone with an open shingles sore, if you haven’t had chickenpox already.
We’d really encourage you to get in touch with your CNS/key worker to let them know and chat this through with them as it may offer you some reassurance to know they’re informed. It’s important they’re aware - they’re best placed to offer you advice on any next steps you may need to take, but also, possibly more tailored advice around what to look out for.
Hi @Waters8O it is difficult to better @Alice_BloodCancerUK response to you.
I always believe in letting my nurse/ GP or consultant know what is happening with me they know you and your medical history.
Please let us know how you get on and look after yourself
Thanks you @Alice_BloodCancerUK and @Erica for your reply it’s great and happy to me.