There was someone who posted on my thread (quite some time ago). I can’t remember who - sorry. They had a transplant from one of their children and were doing well quite some way down the line.
The transplant team will be working in the background to find the best possible match. Sometimes we don’t always see this but it will be happening. Perhaps you can ask to speak to one of the transplant team? Keep asking questions to your consultant too.
Thinking of you lots. Rest up and let us know how things are going when you can.
Hang in there @Caroline30 . Not quite the same but my husband did have a half match from his brother in June. He is doing really well post transplant. I think there was a higher risk of Graft-versus-host-disease to monitor for but his consultant also said there were some benefits to that in reducing any remaining leukaemia cells.
Thinking of you and your family. Be kind to yourselves and hope you can find some pockets of moments to enjoy / rest and relax
Yesterday I was at my lowest since being in isolation this time around. I had a nosebleed from 10am until 4pm had platelets (were 9) and tranexamic acid so it did then stop, blood transfusion too. Good news on transplant, more than one full donor match as been found, scared about having a different line as it is longer but supposedly easier but it sounded horrendous to me yesterday. Iam feeling more positive about it today but still scared to be honest.
Oh @Caroline30 I expect your nosebleed must have felt never ending and then a blood transfusion as well
I sounds positive news on the donor side.
It sounds as if yesterday was a scary day and today more positive, but scary as well. For me the unknown is always scary.
We are here for you and so is the Blood Cancer UK support line on 0808 2080 888, you are not alone with your forum family here.
Be ever so kind to yourself and please do keep posting
Hi @Caroline30
Hopefully this message finds you feeling a little stronger. Great news on the transplant side.
I had a transplant in July with a 10/10 donor and I’m fortunate to be in remission at the 3 month check.
I had a new Hickman line for transplant and it wasn’t as bad as they describe. I had to change hospitals for the transplant and that was hard as it was so large and impersonal but I got there and the staff were lovely on the most part.
Keeping you in my thoughts and remember one day at a time
Big hugs
Keep going @Caroline30 you’re doing marvellously. My husband was apprehensive about the Hickman line and transplant. He’s coming up to 6 months post transplant and is doing good so far.
After 30 days in isolation Iam going home! Consultant I saw today but not met before, is all for patients having treatment has an outpatient in day unit whenever possible to save the time spent in hospital. Appetite is good, bloods and platelets haven’t fully recovered but are stable, neutrophils low, no symptoms of anemia so he is happy for me to attend day unit up to three times a week for blood counts, transfusions etc and obviously keep myself safe. I will take all that to be home, back to my consultant in January to see where Iam at regarding chemo and Stem cell transplant. Fresh air and my bed is all I want for Christmas right now! Just blood transfusion before discharge.
