Hi , my name is Yolanda and I was diagnosed with NLPHL last week , I was told it’s very treatable , no symptoms really , discovered through a routine mammogram, I’m just waiting for a PET scan now but all sorts are going around in my mind like perhaps they will discover another cancer like liver , kidney and colon , I know the risk is small but why am I thinking like this , I have two grandchildren who I absolutely adore , I will be glad when this PET scan is over and I know more , please tell me I’m overthinking!
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Hi @yolanda65 welcome to our forum you must be in shock.
I was also diagnosed through a routine blood test for another condition. I was in shock for ages.
I am certainly not going to tell you that you are overthinking, but I am looking at it slightly differently from my angle. I always say that when I was diagnosed my thoughts and feelings went onto high alert and started whizzing around like a washing machine and my mind was worse at night.
I came home and wrote my will and funeral music and I never thought I would see my son married or that I would have grandchildren, that was 21 yrs ago.
Just be very kind and really look after yourself and I find that this is a place I can say how it really is for me.
Please do keep posting and I look forward to hearing more about you.
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Hi Erica , my consultant was brilliant and she wants to have treatment , even though I don’t know what my staging is yet , I was told NLPHL is usually found early because it’s such a slow growing lymphoma , I just wish I could switch off and stop catastrophizing about the PET scan , my blood count is normal so I’m not anemic so I guess that’s good news at least x
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Oh @yolanda65 You were only diagnosed last week, be very kind to yourself.
Yes, celebrate the good news.
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I understand completely , I’m doing the same , my husband diagnosed to day with non Hodgkin low grade lymphoma, told it’s very early with no symptoms and waiting on scan now ,
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I’m overthinking by thinking they will find something else along with the lymphoma , I have my scan on Tuesday , just want to get over with now x
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I’m doing the same , it’s an anxious time
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Hi Yolanda, did u have your scan to day
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Hi Lindy , sorry I missed this message , I had my PET scan on Tuesday and have an appointment with my consultant on 13th Feb x
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My husband hasn’t had his yet
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My husband has his ct scan on sat ,I’m , very anxious 
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Where is the best place on forum to see most recent posts
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Hi @Lindy1 on your main homepage Blood Cancer UK Online Community Forum there should be a box on the right that says ‘latest’ and has the most recent topics. You can also click on the ‘More’ button at the bottom of this box for further posts. Hope this helps!
Emma (support services nurse)
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Hi Lindy , it is an anxious time waiting, I have my consultant appointment tomorrow so will know more about my staging and if I need treatment, I will let you know xx
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Awk , good to hear from you , hope all goes well to morrow , my husband has his scan on sat . Very anxious times ! I’m from Northern Ireland .
Linda
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Hi Yolanda , hope you are doing well
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How are you doing , hope you ve had your appointment and feeling settled with result ,
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Hi , just wondering how you are doing , we are still waiting to hear which lymphoma my husband had ?, the waiting is long
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Hi Lindy , I start my treatment on 28th March , just want to get it started now ! How is everything with you x
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Aw nice to hear from you , my husbands ct scan was clear but he has waldensroms lymphoma, no symptoms and bloods ate fairly good so active monitoring for now .
What sort of treatment will you be having , hope you re feeling ok . Have been thinking about you . It’s a very anxious time after diagnosis and telling family etc which we just did 2 nights ago , not easy !
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