Hi , my name is Yolanda and I was diagnosed with NLPHL last week , I was told it’s very treatable , no symptoms really , discovered through a routine mammogram, I’m just waiting for a PET scan now but all sorts are going around in my mind like perhaps they will discover another cancer like liver , kidney and colon , I know the risk is small but why am I thinking like this , I have two grandchildren who I absolutely adore , I will be glad when this PET scan is over and I know more , please tell me I’m overthinking!
Hi @yolanda65 welcome to our forum you must be in shock.
I was also diagnosed through a routine blood test for another condition. I was in shock for ages.
I am certainly not going to tell you that you are overthinking, but I am looking at it slightly differently from my angle. I always say that when I was diagnosed my thoughts and feelings went onto high alert and started whizzing around like a washing machine and my mind was worse at night.
I came home and wrote my will and funeral music and I never thought I would see my son married or that I would have grandchildren, that was 21 yrs ago.
Just be very kind and really look after yourself and I find that this is a place I can say how it really is for me.
Please do keep posting and I look forward to hearing more about you.
Hi Erica , my consultant was brilliant and she wants to have treatment , even though I don’t know what my staging is yet , I was told NLPHL is usually found early because it’s such a slow growing lymphoma , I just wish I could switch off and stop catastrophizing about the PET scan , my blood count is normal so I’m not anemic so I guess that’s good news at least x
Oh @yolanda65 You were only diagnosed last week, be very kind to yourself.
Yes, celebrate the good news.
I understand completely , I’m doing the same , my husband diagnosed to day with non Hodgkin low grade lymphoma, told it’s very early with no symptoms and waiting on scan now ,
I’m overthinking by thinking they will find something else along with the lymphoma , I have my scan on Tuesday , just want to get over with now x
I’m doing the same , it’s an anxious time
Hi Yolanda, did u have your scan to day