I was diagnosed with monoclonal gammopathy of unknown significance (MGUS) back in November, I had a routine blood test due to my Osteoporosis. I had bone marrow biopsy, MRI and Pet Scan very quickly, all three completed by 1st week inJan.
On return to Consultant in Feb, I was told that my bone marrow had shown up 10-12% of the naughtiness 
( not that good at the technical stuff)
My consultant and McMillan nurse then explained that I now have Multiple Myeloma. I am still processing it, I try to put it in a box and keep it under the stairs but it keeps popping back out to remind me.
I am in the watch and wait zone, I am waiting for our second grandchild and try my hardest not to think I may not see them both grow. I am a young 66 and we generally enjoy a good social and family life, but those dark moments!
I have been through the stage of guilt as there are so many much younger than me, but on those dark days it doesnāt help.
I found this support group on you tube and after reading others posts I am very pleased to have discovered it.
Hi @Offroader55 I am so glad that you have found our forum.
I was also diagnosed through a routine blood test in another dept. in Dec 20 yrs ago, at 53 yrs old.
I came home and wrote my will and funeral music.
I was in shock for ages and worrying about the āwhat ifās, when ifāsā etc.
I think I had the same Jack in a box as you.
One of the bonusās of our forum I that I can say how I am thinking and feeling on here and know it is OK.
I have always been on watch and wait, I think I am a very lucky girl and my 70th birthday, just before Covid times hit was my best ever with Colin the caterpillar cakes.
Perhaps just try and accept those feelings as natural and yes. I also get survivors guilt.
I did benefit from some counselling.
Just be very kind to yourself and try to take it a day at a time.
Try and enjoy your 2nd grandchild and please do keep posting how you are
Good Morning Erica,
Thank you for the lovely response to my first post.
Just listening to somebody in the same boat is very encouraging and good for the old mental health! I am so glad that I have found this support site and can share my feelings to people who feel the same.
Enjoy your Easter.
Kind regards,
Anne
Hi there
Myeloma is very treatable but not curable
Iām living with myeloma itās been 7 years so far
My kids were my focus for living
Please if anything take this diagnosis as a will to live every day and make memories as time is so very precious
I live with myeloma I donāt fight it as fighting is negative and it needs a lot of energy
Living is kinder and less energy
Boxes have a tendency to flip open
Ask your team if you can have some counselling to process whatās happening I found it invaluable
Try not to make it the elephant in the room and get support from your family
I was given a booklet and I handed it around friends and family so they could read at their pace and invited them to ask questions any I couldnāt answer I asked my team
Take the control away from myeloma and back to you.
Make the most of this time being treatment free
Many of us are living well with myeloma some for more years than myself
The 10-12% of naughtiness is the amount of myeloma cells in your bone marrow
I was 75% on diagnosis as a comparison and myeloma found by chance after being admitted to A&E my myeloma had been active 6-8 months without anyone knowing
Itās really good to see that you are being monitored
Iām going to link you a myeloma uk guide
Hi @Offroader55, @2DB, @Erica.
I like your response 2DB. I have Waldenstrƶm macroglobulinaemia (WM) but for a longtime in monoclonal gammopathy of unknown significance (MGUS) given as Multiple Myloma.
Neither are, as you say curable but neither is the common cold (hope thatās not to flippant).
With 40 years remission for Hodgkin Lymphoma I have lived my life to best Iāve been able including a full 50 years of work paying my NI.
We are all different in both body and mind and that must be respected. My personal approach has always been as taking it as a sports-like challenge with a great Consultant manager and support team in both family, friends, the NHS and Forums such as this.
As Stephen Fry promoted on TV āSay Blood Cancerā.
Hope all goes well for you and yours.
Thank you 2DB, joining this support group has proved to be a very good move. Iām finding so much positive feedback it is doing wonders for my overactive brain!
Regards,
Anne
Hi,
Thank you for your post, This is my first time posting anything on here,
I am finding it a real positive place to be, Iām so sorry that any of you have had to go through this but its uplifting ( and very educational) to read what many of you have to say.
I was diagnosed with smouldering myeloma in jan this year and am now the same as yourself on a watch and wait time scale with blood treats every 3 months as my bone marrow biopsy showed 10% plasma cells ( only just out of the Monoclonal gammopathy of unknown significance (MGUS) stage )
It takes some processing that this is something that we have for life now and will never get rid of it, but i keep telling myself that we can be one of the ones who adds to the statistics of people who lived a long life with this, I decided that i would talk about it with anyone who wants to listen, hiding it away just wasnāt an option for me.
because there is no treatment at this stage of our diagnosis i have taken on a few things myself that may or may not have an impact on the cancer directly but have certainly had a positive impact on my mindset,
Iāve done yoga and meditation for years but have upped the amount i do , i also do cold water dipping /ice baths / cold showers etc as they do have a positive impact on the body in many ways and they work wonders for setting the mind on the right path each day .
I have always eaten a healthy diet ( not eaten processed foods for years) but have made a few changes there too, now its Zero sugar, Zero alcohol, increased certain antioxidants too.
Now on a daily exercise routine instead of just a few times a week.
Iām also doing weekly hyperbaric oxygen sessions and taking curcumin supplicants, Just recently got my latest set of blood test results and they read pretty much the same a the last ones, this is what i am working on, i know its not going to go away but Iām working on keeping the results as they are for as long as possible, currently just turned 59 years young and planning on adding quite a few more years too that number .
Thanks again for your post, And thanks to everyone else on here for the information and support you all give 
Hi and welcome
Your doing all you can for yourself and thatās great to read anything that helps the body and mind Iām all for
Hi @Ppete I am so glad that you have had courage to post on here.
You certainly seem to have a positive mindset and live a lifestyle and diet that works for you.
I am impressed.
Personally I am a Pilates girl and enjoy walking in the fresh air with my Walkman playing my favourite music on it (eclectic mixture from the 60ās on).
Pre Covid I was a gym bunny mostly doing Pilates and modern dance classes, but I got into walking during Covid guidance.restrictions and itās free.
Please do keep posting as I look forward to hearing more about you.
Look after yourself