I had radiotherapy for a plasmacytoma in my tonsil and lymphnode in my neck. 25 sessions didn’t work. I had the lump removed september 2024, still showed on my pet scan that was all last year. Now blood tests every 3 months and wait to see what happens. I am still feeling fatigued all the time 18 months since the radiotherapy. None of the doctors or consultants can explain it. Anyone else have this?
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Hi @Ls11utd and welcome to the forum.
Fatigue is horrible isn’t it. It must be even more frustrating when there is no explanation for it.
I’m glad your team are keeping a regular check on you. I would make sure you keep a note of how you are feeling, ready for your next appointment so that they can monitor it closely.
I had an operation followed by 15 sessions of radiotherapy for follicular lymphoma in the parotid gland. For me, the emotional toll really kicked in a few months after and caused me to feel quite low and lethargic. I’m not saying this is the case for you, I just wondered how you are feeling about it all?
I hope others can also share their experiences with you.
Nichola 
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Thanks Nichola75. It really gets me down, had a really bad year 2024 fatigue, stress, and anxiety not cancer related on top of the cancer. I’ve had counselling and group therapies and have been give all the tools to cope, it helps but i find just sometimes its hard to fight it. I gave in to antidepressants about 8 weeks ago. I just can’t shake the fatigue and dizziness, not sure the tables are helping or not. I did show a deficiency in folic acid, tablets for that too.
Just want a bit more of my life back and not just the odd half day hear and there without having to plan resting. It’s all just a bit rubbish. Sorry for the moan, I know there is alot more people worse off than me and you all have my utmost respect and love.
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Never apologise for saying how you’re feeling and for sharing that. I learnt early on in my journey that comparing to others doesn’t help at all. You’re allowed to feel how you feel and that’s ok.
It sounds like you’ve had a lot going on but have been really proactive in finding support. I wish I had the magic answer for you.
Have you been given any information on fatigue? I don’t want to bombard you with links but Blood Cancer UK have some good material that might be worth a look.
Please make sure you keep posting. Like I said, I’m hoping there will be others who can share their experiences and remember, this is one place where you can say how it really is for you so don’t be hesitant in sharing with us.
One thing we all say this to each other is be kind to yourself. You’ve been through a lot and it’s ok to give yourself a break.
Nichola
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