I’m a 33-year-old awaiting a diagnosis. I’m expecting confirmation that I have chronic myeloid leukaemia (CML) on Monday after an excruciating, anxiety inducing 61-day wait.
I feel as prepared as can be, having done a colossal amount of research on the condition. Thankfully, I have a good support network around me and my partner’ll be coming along too.
Strangely, I think it would actually throw me more off-kilter if I’m told that I don’t have CML because I’d be back in the dark not knowing and I have somewhat resigned myself to having the disease.
Anyway, I’m hoping to draw on other people’s experiences.
Do you have any practical tips about how to handle a cancer diagnosis or being left in limbo?
What should I expect on Monday? How do these things normally go?
What questions should I ask the consultant?
Is it reasonable to ask for confirmation of any diagnosis in writing?
How about print outs of test results?
Are questions around more practical, everyday problems best dealt with by a clinical nurse specialist?
Any advice the community could offer would be greatly appreciated.