What are the real side effects of the Rituximab first infusion?
Do you get fatigue after first infusion, for how long?
Can you wait and see if you have Follicular Non-Hodgkin lymphoma (NHL), and for how long?
I have a swollen liph node undermaxilar.
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Welcome to the forum @fredb, we hope you’re doing okay. Is this a new diagnosis?
I’m sure there are others on here who will be able to share their personal experiences with Rituximab with you.
You may find our booklet on Low-grade non-Hodgkin lymphoma, useful, which you can order or download free, here . Pages 54 and 55 have information around ‘watch and wait’ for low-grade Non-Hodgkin lymphoma (NHL), which you may find useful to read through.
It also includes information on Rituximab on pages 55 and 56, which may be useful for you.
Lymphoma Action also have some information around Rituximab side effects, here.
If you have questions with regards to your individual circumstances, don’t hesitate to speak to your clinical team. It’s important you feel informed.
The Blood Cancer UK support line is also here for you if there’s anything we can do to support you, at any point. Our number is 0808 2080 888 and our email address is support@bloodcancer.org.uk
Take care, Alice
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Hi @fredb - welcome
I had my rituximbab as part of rchop and then for two years as part of maintenance therapy.
The two years maintenance it was administered via a injection into my abdomen.
Apart from some abdominal bruising and tenderness which didn’t last too long at all I had hardly any side effects.
I was tired but I had just finished 9 rounds of rchop and was back at work full time.
I went to work in the morning popped out to the clinic at lunch to get the injection some paracetamol and some antihistamines an hour at the clinic and I was back at work the next day.
I had 12 courses I think every 8 weeks but covid got in the way so some were delayed and I eventually completed them in April 2021.
Doing well in 2024.
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A great big welcome @fredb and I certainly cannot better @Alice_BloodCancerUK and @Jules responses.
I hope you find our forum supportive and informative.
I actually found the emotional side and the not knowing and waiting very difficult.
Really look after yourself and please do keep posting