Hi folks. Simple question - should Chronic lymphocytic leukaemia (CLL) patients have vaccination for RSV (Respiratory Syncytial Virus)? And, if so, is it available on the NHS? My GP seemed unfamiliar with this. But it seems to me that getting this vaccination should be essential. See
How are you keeping? You’ve asked a really good question & I’m pleased you were able to talk this through with your GP.
It appears that the risk across vulnerable groups is being monitored and from the JCVI guidance it looks like there is a potential for a future immunisation programme to be developed.
It also appears that 3 RSV vaccine products have been in development with potential licensure timelines for 2023 or early 2024. Therefore it may be a case of watch this space.
Best Wishes, Lauran
Thanks, Lauran. I’m al most sure I read on the Chronic lymphocytic leukaemia (CLL) forum on the Health Unlocked site that someone in UK had already paid to have the vaccination done privately. And it seems that, as you say, it’s likely to be a coming regular programme on the NHS for vulnerable groups like ours. Since we are indeed so vulnerable to infections, particularly of the chest, I can’t really see anything but good coming from it. I’ll talk to my haematologist about it next. But, in advance of that, I just wondered on here whether UK folk are routinely getting it yet. Thanks for your useful summary.
I’m fine thanks. Probably nearing starting treatment and torn between opting for V&O or Zanubrutinib.