Hi guys,
Where do people go to get their vaccinations other than their GP?
Hubby has had a stem cell transplant and has to have ALL vaccinations from the start.
Our GP has said they are not doing Covid and flu until near winter time……
I am surprised there isn’t a service for people who are immunosuppressive.
Any advise greatly received. Hope everyone having a nice weekend.Tahnks for looking…
Hi @Olivia glad to hear that your husband has had all his childhood vaccine from the start.
I am sure Blood Cancer UK will tell us when we can start booking for our seasonal Covid and flu jabs.
I will copy this to the Blood Cancer UK nurses for you. @BloodCancerUK_Nurses
Look after yourselves
Hi @Olivia
I had my childhood vaccines at the GP
I usually get a txt for the seasonal influenza around October
On my re vaccination schedule it says influenza recommended to give annually in the Autumn
My flu vaccine I have had in the car park as a drive through service since covid.
When I went to be re vaccinated I explained was immunocompromised and could I have first appointment of the day and at the quietest surgery (we have a couple)
I also wear my mask and wait outside to be called in and ask for the person giving the vaccinations to wear a mask
Good thoughts there @2DB thanks so much
Hello Olivia - that’s quite a task for your husband to get revaccinated for all the childhood vaccines he had previously although very much the norm after stem cell transplants - it’s very much the guidance and oversight of his transplant/haematology team that you both need on this as there is certainly timelines for when any given vaccine should be redone and it’s very individual to each patient - so it’s important that you do refer back to them for help and it should also be them that liaises with your GP for their assistance if they are not going to do any of the revaccinations within the hospital. Keep us posted
Thanks @Erica ,@2DB, @Jilly20 ,
Appreciate your replies, as always.
His consultant gave us a vaccination schedule which states which are required & how many months after his Stem cell transplant he needs them. He also needs Covid & flu asap. They told us to get them at the GP but ours don’t do Covid or flu until winter time and hubby is due to have them now. I will ask the consultant on his next visit to see if there is an alternative as we don’t want to wait until winter.
Will keep you updated.x
Ah that’s good I had thought surely they gave you a schedule for all the vaccines 
in theory the flu vaccines should start mid September - if you have a good pharmacist locally may be chat to them as they may be quicker than the GP surgeries in getting stock especially if they also offer paid for vaccines as well. If the consultant appointment isn’t for a while perhaps the clinical nurse specialist where he was treated could give some advice too from other patients experience. Yes keep us posted !
I had my transplant in April 22 and didn’t have my flu vaccination until October of 22
The flu vaccination is updated yearly I believe
Until he gets it just use covid protocol
Keep minimum contact with others who are sick and use a mask etc
Just spotted this in my link
Following clinical assessment, there may be a small number of other adults for whom it would be better not to delay flu vaccination until October. For example, for those who are due to commence immunosuppressive treatment (such as chemotherapy) before October, having flu vaccine before they start treatment would allow them to make a better response to their vaccination. GPs should use clinical judgement to bring forward vaccination in exceptional circumstances, as outlined in the Green Book, and offer vaccination as soon as vaccine comes available in line with contractual arrangements.
Thanks guys,
@2DB, you are always so so informative and back it up with documents!!!
A wealth of knowledge, much appreciated.Hope you are doing ok.
Thanks @ Erica for passing to the nurses.
@Paula1 , any updates with you? Xx
Dear @Olivia,
I hope you and hubby are both doing well?
I have attached the information from our website here Covid vaccine for people with blood cancer | Blood Cancer UK Have the transplant team specified what vaccinations your husband needs to have, this is the information we offer post stem cell which indicates about primary doses -
If you had the covid vaccine before having a stem cell transplant, you will need to be re-vaccinated after your transplant. Your transplant team will give you information on this, including when to have your vaccinations. The NHS recommends you have a course of three primary doses, followed by a booster dose.
NHS England has confirmed that the bivalent vaccines Comirnaty (Pfizer) and Spikevax (Moderna) can be used for both primary and booster vaccinations. Bivalent means the vaccines target two covid variants.
I have also attached here the information from Anthony Nolan - Coronavirus (COVID-19) and your treatment | Anthony Nolan
Have you been given a letter to show what COVID vaccinations he needs so you can show the GP surgery?
Best Wishes
Heidi J (Support Services Nurse)
Hi Heidi,
Many thanks for your message.
Yes Hubby has a list of vaccinations that are required. It is most of his childhood vaccinations. Our GP has allocated a nurse who will provide most of them in the next 6 to 12 months.
We are concerned however about his FLU & and COVID vaccinations as they say they are not doing them until winter time. Hubby is due to have these two vaccinations from now. We are therefore looking for ideas to get them done somewhere else. As suggested by members on this forum we will look into pharmacies. We just thought there would be a nhs service for those immune compromised, and at greater risk.
I will read all the literature you have sent. Many thanks.
Hiya I start my vaccinations in Oct, but waiting to get my covid jab asap.
Back at hospital now on wed for trial treatments, shall update you all then
Take care xx
Hope all goes ok with treatment on Wednesday. Will be thinking you.Take care.x
Hi Olivia and everybody else
Sorry I have been quiet, didn’t know I had been logged out. How’s hubby doing on the trial drugs? I’m starting on cycle 3 tomorrow and have also began having my baby immunisations again and also flu & Covid jabs.
My hair is growing back really thick and curly not sure what to do with it.
On Friday we are having a cheese & wine evening at the local hotel to raise funds for Alaw ward in Bangor where I am having my treatment.
Need to go cook the tea now so il say bye for now, please keep in touch
Paula xx
Hi @Paula1 , don’t apologise, you have a life to lead.
So nice to hear from you.
What meds are you on now then for your consolidation? I hope you are coping well with them without any side effects.
Hubby is doing well, the only side effect is the tiredness. He is lucky to catch up by having the odd afternoon nap if he’s had a bad night. He had numbness in his toes a few days but that’s now gone.He has had his first primary Covid jab but needs another one before he starts on the boosters. He’s also had one flu jab. He starts cycle 3 at the end of this week. It’s been a year now since his diagnosis, it has flown by and been a roller coaster of a year.
Can I say hi to you all on here too, especially @2DB & @Erica. Hope you are doing well.Sending you all virtual hugs…… Take care.xx
Oh @Olivia lovely to hear from you, all good here, thanks, and sending you loads of virtual hugs back.