Smouldering myeloma and uric acid

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Hi,

Does anyone else suffer with high uric acid after being diagnosed with smouldering myeloma.

Does this mean my symptoms are progressing to myeloma. I am also having episodes of gout in the last 2 months.

Just looking for advice, thankyou

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Hello @Glennie

Thank you for posting and I am so sorry that you are having gout episodes, may I ask whether you have spoken to your GP about this? I do hope you are getting some medication to help with this?

Increased levels of Uric Acid is not indicated as a sign of progression to Myeloma, there is some information in our Smouldering myeloma | Blood Cancer UK web pages and in the Smouldering myeloma - Understanding myeloma Infosheet that our colleagues at Myeloma UK produce.
In our information we say there are a few things doctors will look at when deciding whether it’s time to start treatment:

  • the level of paraprotein or light chains in your blood

  • signs that the myeloma has started to cause damage – to your bones or kidneys, for example

  • whether you are experiencing any symptoms.

May I ask whether you have a hospital Haematology team that monitor your blood counts? If so I would suggest talking to them about your gout and concerns.

If you do need to talk please do call: Blood cancer information and support by phone and email | Blood Cancer UK

Best wishes

Gemma

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Thankyou for your reply.

I have been having swellings and pain in my toes for a while and its now progressed to all my finger joints. Not sure what to do I looked on line for my symptoms and gout was an answer so i purchased a home uric acid test machine. My readings have all been over 500 umols. So assuming that the machine correct i have high uric acid.

I am going to speak to my gp to ask for a blood test incase my machine is inaccurate.

Just a niggling worry that it was to do with my smouldering myeloma prompted my question on this forum.

Thankyou for the reassurance its not to do with this. My next haemotology is not till April. Is this something they would be interested in?

Once again thanlyou

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Hi any new symptoms you have report them to your haematology team so that they are aware and they will advise you.

I have been living with myeloma for 8 years and I always report new symptoms to the Clinical nurse as advised.

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Thankyou, i will speak to them if thats the correct thing to do. I havent had a lot of support but they are always very pleasant so i will ring them.

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