I am a 37 year old male and was diagnosed with SMZL last July.
My symptoms at the time were persistent mulcers and upon investigation I was found to have a high WBC count.
My spleen was enlarged at 17cm and I have bone marrow involvement.
I for the past 12months I have bèen on a watch a wait programme with regular blood tests. My WBC count has steadily risen to 34 with all other counts stable.
I know I will need treatment in the future and feel fine at the moment where I am able to exercise and carry out my normal daily routines.
Over the past year I have found it realy hard to find any current research on SMZL and anyone in a similar position as me to talk to at 37 a realise I am very young to have a form of NHL nevermind a rare type such as SMZL. Hopefully someone may get in touch.