Hi everyone, I have a query. I’m going to put this to my health team next time I speak to them, but I wanted to ask you for first-hand opinions.
I have Acute Myeloid Leukaemia, been through 4 blocks of chemo to get into first remission, and at some point will be having a stem cell transplant. That transplant has now been pushed back 2 months.
For the stage after the transplant, there are details of what to cut down, including social meets and contact with pets because my immune system will be renewed. I’m not finding much about the current state I am in, apart from in the weeks before the transplant to cut down social interactions.
I would of course pick the current time to have met someone I want to get close too, who happens to have house cats who don’t go outside. Sensible and considerate, the type to immediately query what needs to be done to make me feel as safe as possible. (The new friend I mean, maybe not the cats )
So my quandary is…. how social can I get in what is now a couple of months to transplant time? Am I to be as careful with my weaker immune system now like I would be with the new one in the months after transplant? Or can that wait until say 2 weeks before I go in for the transplant?
I would be sensible as we have been. Small groups of careful friends max for me, masks, LFT tests, picking places that are quiet and feel well-spaced out, not meeting people clearly ill with a cold … logical stuff to do in modern times. Walking together if the weather is nice. Getting closer to festive time I’ll be still avoiding parties and uncomfortable too-busy situations - I won’t hold close friends to do that themselves as they are fully willing to do LFTs and likewise have similar mindsets.
My impression is … as long as we are sensible, I don’t see huge limitation to what I can do. My health comes first, (I don’t want to do unnecessary risk leading up to the transplant treatment starting), and I’ll be watching fatigue etc so I don’t over-commit.
The “do I pet her cats question” is also hovering around … really miss cat interactions this year
Opinions welcomed with thanks, and best of luck with your own treatment journeys.