I was ment to be admitted to hospital on Monday (22nd July)to have my Stem Cell Transplant and on Thursday (18th)I had the Hickman Line put in but on the Friday they rang up to say that the Stem cell transplant was being postponed because the doner, someone in Germany,had been taken ill,not sure with what.In a way a bit of a relief as I wasn’t looking forward to it,the Stem cell transplant, but postponing the inevitable so in a way best get it over with.Due to the way round it’s happened now I’ll have to get the Hickman Line flushed once a week too until the Stem cell transplant begins.I also discovered I appear to have two coexisting T Cell Lymphomas; Mycosis Fungoides which I knew about and another called PCTL NOS which I didn’t know that I had although I knew about the disorder as I’d read about it as all of these T Cell Lymphomas seem pretty closely related.
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Oh @Kevan7 gosh I would be really messed up with all you have going on.
I do like a plan and when the inevitable gets postponed, well.
Then discovering all sorts of medical things that I don’t understand… well.
Please do keep posting how you are getting on and feeling.
Be ever so kind to yourself and perhaps do not underestimate the emotional impact all this can have xx