Hi @Nick, welcome to our forum, sorry I cannot answer medical questions, too complicated for me.
Perhaps these questions are for someone on your medical team and tell them your fears, concerns and practicalities as well. So many factors are taken into account when making a diagnosis. I also like to write down all my questions and answers and make sure I get answers that I really understand.
What we do seem to share are the fears, thoughts, feelings and practicalities though and they are what we can support you with. @Nichola75 has given you a link to the support line.
I look forward to hearing more from you and what your medical team says.