Surgery with ET

General chat
1

I was diagnose with essential thrombocytopemia in march 2024. I have been waithing for a orthopedic appointment fir a very painful bunion since January 2024
My question is, would it be safe or advisable to have surgery which is mainly for comfort rather than nevvessary. Opions please

3 Likes
2

Hi @jules64.
I sympathise. Bunions are so painful!
I think that’s definitely a question for your medical team. Hopefully they can give you all the information you need to make an informed decision. Are you able to speak to them?

5 Likes
3

Yeah im going to speak with them on monday, just wanted a general feedback.

6 Likes
4

Hi @jules64 good to hear from you again, sorry to hear about the painful bunion.
I really agree with you both it is a good idea to talk to your medical team..
Please do let us know how it goes and really look after yourself.

4 Likes
5

Hello there @jules64, sorry to read of that painful bunion and awaiting its operation. While I have Polycythaemia vera (PV) rather than Essential thrombocythemia (ET), I’ve asked my haematologist about whether to continue taking medicines should I need surgery, for example a tooth extraction.

I take hydroxyurea and aspirin and have thin blood usually, but I was told to stop taking the hydroxyurea 2-3 days before any operation and to start taking it again afterwards that day.

If you take a cytoreductive medicine like hydroxyurea or interferon perhaps check about pausing doses during an operation with your specialist just to be sure, or maybe the lovely Blood Cancer UK nurses @BloodCancerUK-SupportTeam might be able to advise?

4 Likes
6

Thank you fir your replies, i will discuss it on mo day with my cns, if it was a serious operation i wouldn’t query it, but in my mind its for comfort n9t necessity.

7 Likes
7

Oh @jules64 I think comfort is so important.
Please do let us know how you get on on Monday.
Really look after yourself

4 Likes
8

Please let us know how you get on on Monday :blush:

4 Likes
9

I had major shoulder surgery a few months after being diagnosed. Was just told not to take asprin for that day and warned I may bruise more than usual

1 Like
10

How did you get on @jules64 ?

2 Likes