I started with Thrombocytopenia in early 2022. Red blemishes and tiny spots on lower legs and bruising on toes. This was eventually misdiagnosed as Bowden’s disease a type of skin cancer. Only when I asked for a biopsy to be performed was skin cancer ruled out. And burst capillaries diagnosed. Anyway eventually another blood test was abnormal, low platelets and low nutrifils. I was then referred to HAEMOTOLOGY. Platelets continued to fall. After a small bleed on the surface of the eye my GP (who has been excellent) sent me for a emergency blood test and phoned HAEMOTOLOGY. They advised immediate stopping of clopidogril which I had been taking since a TIA in January 2020. Curiously after the stopping of clopidogril the thrombocytopenia cleared up completely and has not returned as I write. Meanwhile I have been diagnosed with CMML. My question is has anyone had a similar experience after stopping the use of clopidogril. I know there is a recognised link between the mRNA covid vaccine and thrombocytopenia although apparently rare, but I was on clopidogril for sometime without ill effect, and was really surprised when the symptoms disappeared after medics discontinued my clopidogril. Mainly because thrombocytopenia was the only symptom I had. Does this ring any bells with anyone else in a similar position. Am I wrong to believe the bruises and penachet just might be a good sign? Sorry I am still clutching at straws phase.
Hi @Unclejack sorry I cannot help you but I hope someone else might be able to.
I believe diagnosis fact finding is to rule conditions in or out.
I think that we are such complex beings and medications seem to interact in different ways in different people.
Please do let us know how you get on.
The main thing is that you really look after yourself.
Erica thanks for your reply,
I have a very enquiring mind and am leaving no stone unturned. This is the biggest battle of my life. I am not anti Vax and had the first three shots in 2021 I also have had the flu shot annually for many years and the pneumonia and shingles shot. My experience so far of my problem has been mixed. For example I had a bone marrow biopsy which initially I was told was inadequate and I needed a second biopsy. Weeks later I attended for a second biopsy only to be told that it wasn’t necessary. Then the bombshell diagnosis was delivered by another doctor NOT my consultant with a few minute chat followed by a brochure basically saying you will die but we don’t know when. So watchful waiting is the path up to now. Sorry to sound bitter. At least my GP has been brilliant.
Thanks again Erica