I’ve started my TLGL journey a few weeks ago, and have just completed my 5th week of daily chemo and G-CSF injections.
Before my diagnose i was pretty active at my allotment and (touring) cycling.
Mr web world tells me that I cant do any of them with my low neutrophils (currently 0.06) .
What did people have to change at the start of their chronic leukemia journey?
Hi @Grum
I was diagnosed with a different cancer.
On the whole I managed to stay active with adjustment.
Walking on the flat mainly and no longer doing hill walks. Also reducing steps.
After intensive chemotherapy I found I had to adapt a lot more and it was the same after a Bone Marrow Transplant.
Listening to your body and accepting when you need to rest is important as everyone is different.
Take care
Your team will tell you what to be careful of, so do check with them but gardening carries a risk of aspergillus (funghi/mould). You don’t want to be inhaling any spores with such low neuts. You maybe able to glove and mask up and still do it though - check with your team. Good luck xx
Hi @Spangleystar when I was diagnosed with Chronic lymphocytic leukaemia ('CLL') I was told to avoid children, animals and gardening, it was not very practical in the real world !!
Not practical at all and overkill if you weren’t on treatment! I was only told about aspergillus after my stem cell transplant, when my neuts were rock bottom xx
That wouldn’t work for me… too many pets!
@grum You may want to delegate any ‘pick up’ duties or cat litter to someone else - either that or mask & gloves too!
I wasn’t too disappointed about this bit 
Oh yes, already delegated 
Hello again @Grum, sorry to read of your TLGL diagnosis causing you to check Mr Web AKA Dr Google! I see you’ve had great tips from others and would second @Spangleystar in saying do check with your specialists as we each have such unique health histories that googling will never be able to accurately respond to.
It may be that after your body gets used to the treatments your neutrophil levels improve, which I imagine will benefit your immunity. Although I live with a different type of chronic blood cancer, I saw my blood cell numbers stabilise over time thanks to taking daily chemotherapy (hydroxyurea, in my case). Again, pass this by your specialist.
In the meantime, here’s the great information from Blood Cancer UK about managing infection risks and neutropenia: Infection, neutropenia and sepsis | Blood Cancer UK
I hope you get back to your touring soon @Grum—it took me a while but I’m back to hiking with abandon. Don’t let this stop you from getting outdoors and keeping active, but perhaps give yourself a little time to adapt your pastimes?