We wanted to create a space for anyone who is currently going through treatment for blood cancer, or has any worries or concerns about treatment, during the current Coronavirus outbreak. If you need support, or just want to chat things through, please feel free to use this space to share.
I’m on Azacitidine 5 days in every 28 plus pre chemotherapy blood test the week preceding.
I had treatment every day last week.
The only difference is we had to have temperatures taken before allowed in clinic and not arrive too early. Relatives and friends not allowed to accompany patients anymore which is good as some patients have two companions.
I’m back on 23/4for pre chemo blood test and chemotherapy the following week.
After reading on bbc news that some had had their treatment cancelled or postponed I must admit I’m rather anxious that the same will occur at my clinic.
Understand your concern @Blackhat but they will not do anything that compromises your treatment, I am sure of it. If not already, I would strongly recommend you phone your clinical support to raise your concern, I am sure they will put your mind at rest. (By the way, I added a few more songs to the list!)
I’m sure the clinic will contact me if any change of plans.
The whole situation is ever shifting, I’ll check with clinic closer to my next cycle.
Hi Anthony, thank you for sharing this, it’s totally understandable that you’re feeling anxious about this. It sounds really difficult to not know how or whether your treatment pathway might be affected or adapted.
Have you shared your concerns around this with a member of your treatment team such as your clinical nurse specialist or consultant? We would really encourage you to get in touch with them too talk things through if you have concerns about how the current Coronavirus situation might impact your treatment and care. You may want to contact them by phone before your appointment on the 23rd, so you can talk things through before then?
We are aware that in some cases, it may be necessary for doctors to discuss with patients the risk of having treatment at this time compared with the risk of delaying or changing treatment. Treatment teams are working to determine the best course of action for people, in the context of each person’s individual circumstances. If there is a disruption to a person’s treatment plan, their treatment team will work to determine the best course of action. For anyone whose treatment is delayed, they will be followed-up closely by their healthcare team and if their condition changes, decisions about treatment can be re-assessed.
If you would like to chat any of this through with us Anthony, please don’t hesitate to get in touch with us on the support line. We would be happy to help in any way that we can. It’s totally understandable that you’re feeling worried, so just remember that we are only a phone call or an email away.
Take care, Alice